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- W3644589 abstract "There are a substantial number of pediatric patients with chronic health conditions who choose to remain with their pediatric providers after they reach 18 years of age. The PedsQLTM 4.0 Generic Core Scales Young Adult Version was developed to facilitate the evaluation of differences in HRQOL across and between pediatric age groups, as well as the tracking of HRQOL longitudinally, while maintaining scale construct consistency. The 23-item PedsQLTM 4.0 Generic Core Scales Young Adult Version and the SF-8TM Health Survey were completed by 1,256 undergraduate students ages 18-25 enrolled in a large state university. The PedsQLTM 4.0 Young Adult Version demonstrated excellent reliability for the Total Scale Score (α = 0.86), differentiated between healthy university students and university students with a chronic health condition, and was significantly correlated with the SF-8TM. The results demonstrate the reliability and validity of the PedsQLTM 4.0 Generic Core Scales Young Adult Version. Pediatric Patient Reported Outcomes (PROs) The measurement of pediatric healthrelated quality of life (HRQOL) in pediatric medicine and health services research has grown dramatically over the past decade [1, 2]. Recent legislative changes have produced both voluntary and mandatory guidelines for drug studies in children, resulting in a substantial increase in pediatric clinical trials [3]. While HRQOL measurement has been advocated in pediatric clinical trials [4], the emerging paradigm shift toward patient-reported outcomes (PROs) in clinical trials [3] has provided the opportunity to further emphasize the value and critical need for pediatric patient selfreport measurement as efficacy outcomes in clinical trials [5-8]. PedsQLTM Measurement Model The PedsQLTM (Pediatric Quality of Life InventoryTM) builds on a programmatic measurement instrument development effort by Varni and colleagues in pediatric chronic health conditions during the past 25 years [9-13]. A distinct goal of the PedsQLTM Measurement Model has been to develop and test brief measures for the broadest age group empirically feasible, including child self-report for ages 5-18 and parent proxy-report for ages 2-18 [12, 13]. Designed as a modular approach to measuring pediatric HRQOL, the PedsQLTM Measurement Model integrates the relative merits of generic and diseasespecific approaches [12, 14]. The PedsQLTM Disease and Condition Specific Modules were designed to measure HRQOL domains germane to specific pediatric chronic health conditions, and include the PedsQLTM Asthma, Arthritis/Rheumatology, Brain Tumor, Cancer, Diabetes, End Stage Renal Disease, Cardiac, and Cerebral Palsy Modules, as well as the generic PedsQLTM Multidimensional Fatigue Scale, Cognitive Functioning Scale, and Pediatric Pain QuestionnaireTM [10, 15-26]. PedsQLTM 4.0 Generic Core Scales The 23-item PedsQLTM 4.0 Generic Core Scales were developed specifically for application in both healthy and patient populations, and have resulted from an extensive iterative process involving numerous patient and parent focus groups and individual focus interviews, item generation, cognitive interviewing, pretesting, and subsequent field testing [13]. With international data on over 35,000 healthy children and children with pediatric chronic health conditions published or in press in over 170 peerreviewed journals since 2001 (see Publications, www.pedsql.org), the PedsQLTM 4.0 Generic Core Scales have been shown to distinguish between healthy children and children with pediatric chronic health conditions [13, 17, 19, 27, 28], demonstrated sensitivity to disease severity, responsiveness through patient change over time [15, 17, 28], shown significant intercorrelations with disease-specific symptom scales (based on the conceptualization of diseasespecific symptoms as causal indicators of generic HRQOL)[13, 27, 29], and demonstrated an impact on clinical decision making, showing significant associations with Reliability and Validity of the PedsQLTM 4.0 Generic Core Scales Young Adult Version James W. Varni, Ph.D., Christine A. Limbers, M.S. 1 Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, Texas, USA 2 Department of Psychology, College of Liberal Arts, Texas A&M University, College Station, Texas, USA" @default.
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- W3644589 date "2007-01-01" @default.
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- W3644589 title "The Patient-Reported Outcomes Measurement Information System (PROMIS) Seeks to Improve and Standardize Measures of Five Generic Health-Related QOL Domains" @default.
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