FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3090643271> ?p ?o ?g. }

• W3090643271 endingPage "80" @default.
• W3090643271 startingPage "67" @default.
• W3090643271 abstract "The objective of this article is to present various views from different groups of citizens on the topic of whole genome sequencing (WGS). Sixteen focus groups were carried out in Italy and Austria which aimed at reflecting on the question of how to ensure that the implementation of WGS into the clinic is relevant and responsive to the needs of all members of society. In the qualitative analysis of the focus groups, three key themes (knowing, relationships and trust) were investigated. Although the majority of the participants favoured a person-centred care approach, we also found more radical perspectives in the relationship theme. This includes a self-centred orientation in which health care institutions should be prepared to integrate self-interpretation efforts of citizens and develop strategies to deal with them. Different attitudes towards getting to know genetic information (knowing) and varied approaches to decision-making for or against the use of WGS were observed. Personal capacities, in particular those to handle medical information, were emphasized as key factors. This means that it is important not to connect the desire not to know with a rejection of the technology per se but rather to support information and consultancy processes that effectively involve citizens. Concerning the third theme, we have underlined the important role of mistrust in addition to trust because it mostly points to areas or conditions considered problematic. Thus, mistrust is also a way to articulate critique, for example, of the profit-making with patient data, that has to be taken seriously by governance." @default.
• W3090643271 created "2020-10-08" @default.
• W3090643271 creator A5017122885 @default.
• W3090643271 creator A5046799808 @default.
• W3090643271 creator A5068822187 @default.
• W3090643271 date "2020-09-30" @default.
• W3090643271 modified "2023-10-17" @default.
• W3090643271 title "Knowing, relationships and trust—citizens’ perceptions of whole genome sequencing for the Genetics Clinic of the Future" @default.
• W3090643271 cites W1569816732 @default.
• W3090643271 cites W1575920370 @default.
• W3090643271 cites W1584297321 @default.
• W3090643271 cites W1976256107 @default.
• W3090643271 cites W1979290264 @default.
• W3090643271 cites W1991640972 @default.
• W3090643271 cites W2011655883 @default.
• W3090643271 cites W2048481801 @default.
• W3090643271 cites W2083579134 @default.
• W3090643271 cites W2106032162 @default.
• W3090643271 cites W2129507083 @default.
• W3090643271 cites W2130027021 @default.
• W3090643271 cites W2130887906 @default.
• W3090643271 cites W2136345758 @default.
• W3090643271 cites W2159397589 @default.
• W3090643271 cites W2159997698 @default.
• W3090643271 cites W2160698850 @default.
• W3090643271 cites W2168323242 @default.
• W3090643271 cites W2179063987 @default.
• W3090643271 cites W2489007269 @default.
• W3090643271 cites W2510370253 @default.
• W3090643271 cites W2547529621 @default.
• W3090643271 cites W2563545471 @default.
• W3090643271 cites W2580761472 @default.
• W3090643271 cites W2612011127 @default.
• W3090643271 cites W2756841523 @default.
• W3090643271 cites W2763192898 @default.
• W3090643271 cites W2827643900 @default.
• W3090643271 cites W2868826599 @default.
• W3090643271 cites W2887124611 @default.
• W3090643271 cites W2889401411 @default.
• W3090643271 cites W3128635245 @default.
• W3090643271 cites W4238691762 @default.
• W3090643271 cites W4242338380 @default.
• W3090643271 cites W4246938793 @default.
• W3090643271 cites W573846095 @default.
• W3090643271 doi "https://doi.org/10.1007/s12687-020-00486-0" @default.
• W3090643271 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/7846639" @default.
• W3090643271 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/32997319" @default.
• W3090643271 hasPublicationYear "2020" @default.
• W3090643271 type Work @default.
• W3090643271 sameAs 3090643271 @default.
• W3090643271 citedByCount "5" @default.
• W3090643271 countsByYear W30906432712020 @default.
• W3090643271 countsByYear W30906432712022 @default.
• W3090643271 countsByYear W30906432712023 @default.
• W3090643271 crossrefType "journal-article" @default.
• W3090643271 hasAuthorship W3090643271A5017122885 @default.
• W3090643271 hasAuthorship W3090643271A5046799808 @default.
• W3090643271 hasAuthorship W3090643271A5068822187 @default.
• W3090643271 hasBestOaLocation W30906432711 @default.
• W3090643271 hasConcept C136764020 @default.
• W3090643271 hasConcept C144024400 @default.
• W3090643271 hasConcept C15744967 @default.
• W3090643271 hasConcept C160735492 @default.
• W3090643271 hasConcept C162324750 @default.
• W3090643271 hasConcept C169760540 @default.
• W3090643271 hasConcept C17744445 @default.
• W3090643271 hasConcept C187736073 @default.
• W3090643271 hasConcept C190248442 @default.
• W3090643271 hasConcept C19165224 @default.
• W3090643271 hasConcept C199360897 @default.
• W3090643271 hasConcept C199539241 @default.
• W3090643271 hasConcept C26760741 @default.
• W3090643271 hasConcept C33566652 @default.
• W3090643271 hasConcept C36289849 @default.
• W3090643271 hasConcept C39389867 @default.
• W3090643271 hasConcept C39549134 @default.
• W3090643271 hasConcept C41008148 @default.
• W3090643271 hasConcept C527412718 @default.
• W3090643271 hasConcept C56995899 @default.
• W3090643271 hasConceptScore W3090643271C136764020 @default.
• W3090643271 hasConceptScore W3090643271C144024400 @default.
• W3090643271 hasConceptScore W3090643271C15744967 @default.
• W3090643271 hasConceptScore W3090643271C160735492 @default.
• W3090643271 hasConceptScore W3090643271C162324750 @default.
• W3090643271 hasConceptScore W3090643271C169760540 @default.
• W3090643271 hasConceptScore W3090643271C17744445 @default.
• W3090643271 hasConceptScore W3090643271C187736073 @default.
• W3090643271 hasConceptScore W3090643271C190248442 @default.
• W3090643271 hasConceptScore W3090643271C19165224 @default.
• W3090643271 hasConceptScore W3090643271C199360897 @default.
• W3090643271 hasConceptScore W3090643271C199539241 @default.
• W3090643271 hasConceptScore W3090643271C26760741 @default.
• W3090643271 hasConceptScore W3090643271C33566652 @default.
• W3090643271 hasConceptScore W3090643271C36289849 @default.
• W3090643271 hasConceptScore W3090643271C39389867 @default.
• W3090643271 hasConceptScore W3090643271C39549134 @default.
• W3090643271 hasConceptScore W3090643271C41008148 @default.
• W3090643271 hasConceptScore W3090643271C527412718 @default.

• next