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• W4288698502 abstract "Abstract Introduction The Haemophilia Activities List (HAL) and paediatric HAL assess self‐reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed. Aim This study aimed to determine the agreement between the pedHAL/HAL full and pedHAL/HAL short and construct validity and internal consistency of the pedHAL / HAL short in persons with haemophilia (PWH). Methods A cross‐sectional secondary analysis of the Hemophilia in the Netherlands‐6 national survey was performed. Adult and paediatric PWH completed the original pedHAL/HAL full , from which pedHAL / HAL short were derived. Score differences between the original and short versions were calculated. Construct validity was studied by testing hypotheses regarding the relationship of the pedHAL/HAL short with the pedHAL/HAL full , Haemophilia & Exercise Project Test‐Questionnaire (HEP‐Test‐Q), Canadian Haemophilia Outcomes‐Kids’ Life Assessment Tool (CHO‐KLAT) and RAND 36‐item Health Survey (RAND‐36) (convergent/discriminant validity) as well as its ability to discriminate between subgroups (known‐group validity). Internal consistency was assessed with Cronbach's α . Results We included 113 children (median 10y [range 4–17], 53% severe haemophilia) and 691 adults (median 51y [range 18–88], 35% severe). Scores of the pedHAL/HAL full and pedHAL/HAL short were similar with high correlations (>0.9). Construct validity was confirmed for the pedHAL/HAL short . The HAL short was able to discriminate between different disease severities and ages. Cronbach's α of the pedHAL/HAL short was 0.95–0.97. Conclusion This study confirmed the agreement between the pedHAL/HAL full and the pedHAL/HAL short and the construct validity of the pedHAL/HAL short . The next step is to study construct validity of the pedHAL/HAL short when administered as short forms." @default.
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• W4288698502 date "2022-07-29" @default.
• W4288698502 modified "2023-10-12" @default.
• W4288698502 title "Validation of the pedHAL _short and HAL _short in Dutch children and adults with haemophilia" @default.
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• W4288698502 doi "https://doi.org/10.1111/hae.14628" @default.
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