Matches in SemOpenAlex for { <https://semopenalex.org/work/W121956036> ?p ?o ?g. }
Showing items 1 to 77 of
77
with 100 items per page.
- W121956036 abstract "This investigation focuses on the effects of Alzheimer‟s disease beyond the consequences it implicates for the patient. It must be recognized that this is a disease whose repercussions affect the family caregiver of the diseased with the same strength that it disturbs the principal carrier. The sporadic characteristics of Alzheimer‟s disease, externalized through mood swings, memory loss, the eventual loss of bodily functions, and, among other symptoms, the inability to communicate, create a category of instability and volatility experienced solely by the primary caregiver. This inconsistency that the primary family caregiver comes to know not only disturbs the patient-caregiver relationship, but also affects the caregiver‟s everyday, from stress levels to kinship ties. This study was realized in Fortaleza, Brazil, with a focus on the lowincome neighborhood of Cristo Redentor. The socio-economic aspect plays a part in understanding the access to support where the government does not offer it. Through interviews with caregivers, discussions with health care workers, and participatory observation, the research found that that the patient-caregiver relationship is reorganized in such a way that it does not mirror any other relationship that the patient maintains. Furthermore, due to the nature of Alzheimer‟s disease and its effects on the patient, the family caregiver must appropriate the patient‟s life narrative for it to continue. Lastly, the research emphasizes the caregiver‟s relationship with stress, noting that the experts‟ suggestions for reducing the overwhelming stress levels are by in large not heeded. I would like to thank Maria, Maria Osmarina, Fabio, Lucas, Felipe, and Sabrina who graciously welcomed me into their home and treated me like a part of their family. While I could never have accomplished this research without them, I must add an extra amount of gratitude to the palavras soltas da minha avo, Maria Osmarina, without which, the idea for this research would never have occurred to me. I would also like to thank Deuciângela Caravalho, my project advisor, whose first words to me on the phone were, “My God, I don‟t understand anything this boy is saying,” but who still had tremendous patience, and guided me through my struggles. Lastly, to the support network of the SIT Staff, without Bill, Emly, Neda, or Oelito, I simply would have been lost. Obrigadao. I dedicate this research to all the people who quietly give care to family members, not due to obligation, but out of love; you all have bigger hearts than can ever be imagined. Table of" @default.
- W121956036 created "2016-06-24" @default.
- W121956036 creator A5010741269 @default.
- W121956036 date "2011-01-01" @default.
- W121956036 modified "2023-09-23" @default.
- W121956036 title "Living for Two: Experiencing Alzheimer’s Disease Through the Caregiver" @default.
- W121956036 hasPublicationYear "2011" @default.
- W121956036 type Work @default.
- W121956036 sameAs 121956036 @default.
- W121956036 citedByCount "0" @default.
- W121956036 crossrefType "journal-article" @default.
- W121956036 hasAuthorship W121956036A5010741269 @default.
- W121956036 hasConcept C138496976 @default.
- W121956036 hasConcept C138885662 @default.
- W121956036 hasConcept C142724271 @default.
- W121956036 hasConcept C144024400 @default.
- W121956036 hasConcept C144348335 @default.
- W121956036 hasConcept C15744967 @default.
- W121956036 hasConcept C19165224 @default.
- W121956036 hasConcept C199033989 @default.
- W121956036 hasConcept C2776101926 @default.
- W121956036 hasConcept C2778900529 @default.
- W121956036 hasConcept C2779134260 @default.
- W121956036 hasConcept C2779483572 @default.
- W121956036 hasConcept C2779878486 @default.
- W121956036 hasConcept C2780733359 @default.
- W121956036 hasConcept C2910568114 @default.
- W121956036 hasConcept C41895202 @default.
- W121956036 hasConcept C71924100 @default.
- W121956036 hasConcept C74909509 @default.
- W121956036 hasConcept C77805123 @default.
- W121956036 hasConceptScore W121956036C138496976 @default.
- W121956036 hasConceptScore W121956036C138885662 @default.
- W121956036 hasConceptScore W121956036C142724271 @default.
- W121956036 hasConceptScore W121956036C144024400 @default.
- W121956036 hasConceptScore W121956036C144348335 @default.
- W121956036 hasConceptScore W121956036C15744967 @default.
- W121956036 hasConceptScore W121956036C19165224 @default.
- W121956036 hasConceptScore W121956036C199033989 @default.
- W121956036 hasConceptScore W121956036C2776101926 @default.
- W121956036 hasConceptScore W121956036C2778900529 @default.
- W121956036 hasConceptScore W121956036C2779134260 @default.
- W121956036 hasConceptScore W121956036C2779483572 @default.
- W121956036 hasConceptScore W121956036C2779878486 @default.
- W121956036 hasConceptScore W121956036C2780733359 @default.
- W121956036 hasConceptScore W121956036C2910568114 @default.
- W121956036 hasConceptScore W121956036C41895202 @default.
- W121956036 hasConceptScore W121956036C71924100 @default.
- W121956036 hasConceptScore W121956036C74909509 @default.
- W121956036 hasConceptScore W121956036C77805123 @default.
- W121956036 hasLocation W1219560361 @default.
- W121956036 hasOpenAccess W121956036 @default.
- W121956036 hasPrimaryLocation W1219560361 @default.
- W121956036 hasRelatedWork W1499526351 @default.
- W121956036 hasRelatedWork W1998614289 @default.
- W121956036 hasRelatedWork W2008160988 @default.
- W121956036 hasRelatedWork W2031295119 @default.
- W121956036 hasRelatedWork W209748361 @default.
- W121956036 hasRelatedWork W2244103013 @default.
- W121956036 hasRelatedWork W230147406 @default.
- W121956036 hasRelatedWork W2333206527 @default.
- W121956036 hasRelatedWork W2335379106 @default.
- W121956036 hasRelatedWork W2464827160 @default.
- W121956036 hasRelatedWork W2490683106 @default.
- W121956036 hasRelatedWork W2601272973 @default.
- W121956036 hasRelatedWork W2744917652 @default.
- W121956036 hasRelatedWork W2779576217 @default.
- W121956036 hasRelatedWork W278013886 @default.
- W121956036 hasRelatedWork W2978890234 @default.
- W121956036 hasRelatedWork W3033321645 @default.
- W121956036 hasRelatedWork W765266570 @default.
- W121956036 hasRelatedWork W972534247 @default.
- W121956036 hasRelatedWork W213121858 @default.
- W121956036 isParatext "false" @default.
- W121956036 isRetracted "false" @default.
- W121956036 magId "121956036" @default.
- W121956036 workType "article" @default.