Matches in SemOpenAlex for { <https://semopenalex.org/work/W137381101> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W137381101 endingPage "46" @default.
- W137381101 startingPage "738" @default.
- W137381101 abstract "To develop a disease specific measure of quality of life for application in children with juvenile rheumatoid arthritis and juvenile spondyloarthritides-the Juvenile Arthritis Quality of Life Questionnaire (JAQQ).Patients and their parents were interviewed by a trained interviewer using a questionnaire focusing on physical function, psychosocial function, and general symptoms to determine the most appropriate items to include in the JAQQ. Respondents volunteered items and scored them for frequency of occurrence and importance. Items so generated were scored by a panel of experts for potential responsiveness and categorized into dimensions. Item number was reduced using this scoring system. The product was then pretested to confirm its construct validity and responsiveness. Thereafter, it was distributed to clinical experts to establish face and content validity.91 patients, mean age 10.35 years (range 1.25-18.0), mean disease duration 3.99 years, and their parents were included in the interview process. 220 items generated were ultimately reduced to 85. Pretesting this version of the instrument in a further 30 patients showed it to have construct validity and responsiveness and led to a further reduction in items to 74, distributed in 4 dimensions: gross motor function (17 items), fine motor function (16 items), psychosocial function (22 items), and general symptoms (19 items). Face and content validity were established in 20 clinicians. Scaling was by 7 point Likert scale to enhance responsiveness. English and French versions were developed.The JAQQ measures physical and psychosocial function and an array of general symptoms. Preliminary data suggest it is valid and responsive and thus might have potential in clinical trials." @default.
- W137381101 created "2016-06-24" @default.
- W137381101 creator A5016618366 @default.
- W137381101 creator A5030380233 @default.
- W137381101 creator A5055246678 @default.
- W137381101 creator A5059333417 @default.
- W137381101 creator A5075608371 @default.
- W137381101 date "1997-04-01" @default.
- W137381101 modified "2023-10-06" @default.
- W137381101 title "The Juvenile Arthritis Quality of Life Questionnaire--development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides." @default.
- W137381101 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/9101511" @default.
- W137381101 hasPublicationYear "1997" @default.
- W137381101 type Work @default.
- W137381101 sameAs 137381101 @default.
- W137381101 citedByCount "95" @default.
- W137381101 countsByYear W1373811012012 @default.
- W137381101 countsByYear W1373811012013 @default.
- W137381101 countsByYear W1373811012014 @default.
- W137381101 countsByYear W1373811012015 @default.
- W137381101 countsByYear W1373811012016 @default.
- W137381101 countsByYear W1373811012017 @default.
- W137381101 countsByYear W1373811012018 @default.
- W137381101 countsByYear W1373811012020 @default.
- W137381101 countsByYear W1373811012021 @default.
- W137381101 countsByYear W1373811012022 @default.
- W137381101 countsByYear W1373811012023 @default.
- W137381101 crossrefType "journal-article" @default.
- W137381101 hasAuthorship W137381101A5016618366 @default.
- W137381101 hasAuthorship W137381101A5030380233 @default.
- W137381101 hasAuthorship W137381101A5055246678 @default.
- W137381101 hasAuthorship W137381101A5059333417 @default.
- W137381101 hasAuthorship W137381101A5075608371 @default.
- W137381101 hasConcept C115961737 @default.
- W137381101 hasConcept C118552586 @default.
- W137381101 hasConcept C126322002 @default.
- W137381101 hasConcept C150966472 @default.
- W137381101 hasConcept C159110408 @default.
- W137381101 hasConcept C171606756 @default.
- W137381101 hasConcept C1862650 @default.
- W137381101 hasConcept C2777077863 @default.
- W137381101 hasConcept C2779951463 @default.
- W137381101 hasConcept C2780574019 @default.
- W137381101 hasConcept C33191230 @default.
- W137381101 hasConcept C49453240 @default.
- W137381101 hasConcept C54355233 @default.
- W137381101 hasConcept C58916136 @default.
- W137381101 hasConcept C70410870 @default.
- W137381101 hasConcept C71924100 @default.
- W137381101 hasConcept C86803240 @default.
- W137381101 hasConceptScore W137381101C115961737 @default.
- W137381101 hasConceptScore W137381101C118552586 @default.
- W137381101 hasConceptScore W137381101C126322002 @default.
- W137381101 hasConceptScore W137381101C150966472 @default.
- W137381101 hasConceptScore W137381101C159110408 @default.
- W137381101 hasConceptScore W137381101C171606756 @default.
- W137381101 hasConceptScore W137381101C1862650 @default.
- W137381101 hasConceptScore W137381101C2777077863 @default.
- W137381101 hasConceptScore W137381101C2779951463 @default.
- W137381101 hasConceptScore W137381101C2780574019 @default.
- W137381101 hasConceptScore W137381101C33191230 @default.
- W137381101 hasConceptScore W137381101C49453240 @default.
- W137381101 hasConceptScore W137381101C54355233 @default.
- W137381101 hasConceptScore W137381101C58916136 @default.
- W137381101 hasConceptScore W137381101C70410870 @default.
- W137381101 hasConceptScore W137381101C71924100 @default.
- W137381101 hasConceptScore W137381101C86803240 @default.
- W137381101 hasIssue "4" @default.
- W137381101 hasLocation W1373811011 @default.
- W137381101 hasOpenAccess W137381101 @default.
- W137381101 hasPrimaryLocation W1373811011 @default.
- W137381101 hasRelatedWork W137381101 @default.
- W137381101 hasRelatedWork W1741771512 @default.
- W137381101 hasRelatedWork W1825102967 @default.
- W137381101 hasRelatedWork W1961924984 @default.
- W137381101 hasRelatedWork W2020807119 @default.
- W137381101 hasRelatedWork W2125392857 @default.
- W137381101 hasRelatedWork W2152098677 @default.
- W137381101 hasRelatedWork W2534611126 @default.
- W137381101 hasRelatedWork W3160907682 @default.
- W137381101 hasRelatedWork W4283069830 @default.
- W137381101 hasVolume "24" @default.
- W137381101 isParatext "false" @default.
- W137381101 isRetracted "false" @default.
- W137381101 magId "137381101" @default.
- W137381101 workType "article" @default.