FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W13891030> ?p ?o ?g. }

• W13891030 startingPage "24" @default.
• W13891030 abstract "The considerable progress that has been made over the past decade toward understanding and advancing diagnostic tools and treatment regimens for Alzheimer's disease and other forms of dementia has undoubtedly shaped the experience of dementia not only for the person with the disease, but for family members as well. The majority of dementia care is provid- ed by families in the community, and there is little dispute that families put forth heroic efforts to keep loved ones safe, comfortable, and in familiar sur- roundings for as long as possible. The past thirty years of research have yielded a compre- hensive depiction of all that is involved in providing dementia care to a family member, as well as both the rewards and emotional burdens of providing that care. Yet we still know very little about such important questions as how family interactional styles and dynamics might influence the outcomes of care, whether relationship patterns vary across the trajectory of the disease, or the extent to which family dynamics serve as moderat- ing or mediating factors in the provision of care and support. For the well-being of patients and families, it is crucial that such questions be addressed, taking into account some particular challenges. For example, one of the central challenges healthcare and social service providers face when they try to develop a plan for patients and families to follow after a diagnosis of dementia is the degree of variability that exists among individual patients and families. Indeed, variability is one aspect that remains a constant in our current understanding of dementia. For example, origins of the disease, rates of progression, and clinical manifestations are different from person to person. Moreover, people with dementia show a great deal of variation in the symptoms they experience, in their attitudes and adjustment toward the illness, and in experiences that determine quality of life. Similarly, while the emotional and physical tasks associated with caring for someone with dementia are largely universal, families vary in the ways in which they respond to the situation, including how they choose to organize themselves and address the situation. As the symptoms and care needs of the person with the condition change throughout the course of dementia, family dynamics manifest themselves and are affected in a number of ways. Family Dynamics in Early-Stage Dementia Since the FDA approved the first medication for the treatment of Alzheimer's in 1993, the standard of care has become promotion of early diagnosis. The push for early diagnosis, propelled by the belief that available treatments have maximal benefit in the earliest stages of the disease, has led to increased awareness and recognition of dementia symptoms. As a result, people with memory loss and other symptoms that do not yet meet the minimum threshold for a dementia diagnosis are seeking treatment. Proponents of early diagnosis contend that early confirmation of the disease allows the patient and family time to get legal and financial affairs in order and to make plans for future care while the patient is able to express preferences. Unfortunately, however, the actual needs of patients and family members dealing with early diagnosis have not been well described to date, and the voice of the patient has been largely absent. There is anecdotal evidence that patients and families at this stage may benefit from sharing and comparing their experiences with others. For example, the early-stage support group offered primarily by local chapters of the Alzheimer's Association provides this type of forum. A single published report describing anecdotal and qualitative data from a clinical trial (Logsdon, McCurry, and Teri, 2007) suggested that participation in early-stage support groups improves quality of life for participants and decreases family conflict. Family Dynamics in Middle-Stage Dementia The middle stages of dementia are characterized by major changes in memory and other cognitive functions. …" @default.
• W13891030 created "2016-06-24" @default.
• W13891030 creator A5038683743 @default.
• W13891030 creator A5089743815 @default.
• W13891030 date "2009-04-01" @default.
• W13891030 modified "2023-09-26" @default.
• W13891030 title "Losing Function, Staying Connected: Family Dynamics in Provision of Care for People with Dementia" @default.
• W13891030 hasPublicationYear "2009" @default.
• W13891030 type Work @default.
• W13891030 sameAs 13891030 @default.
• W13891030 citedByCount "3" @default.
• W13891030 countsByYear W138910302015 @default.
• W13891030 crossrefType "journal-article" @default.
• W13891030 hasAuthorship W13891030A5038683743 @default.
• W13891030 hasAuthorship W13891030A5089743815 @default.
• W13891030 hasConcept C14036430 @default.
• W13891030 hasConcept C142724271 @default.
• W13891030 hasConcept C144024400 @default.
• W13891030 hasConcept C15744967 @default.
• W13891030 hasConcept C2779134260 @default.
• W13891030 hasConcept C2779304628 @default.
• W13891030 hasConcept C2779483572 @default.
• W13891030 hasConcept C36289849 @default.
• W13891030 hasConcept C71924100 @default.
• W13891030 hasConcept C78458016 @default.
• W13891030 hasConcept C86803240 @default.
• W13891030 hasConceptScore W13891030C14036430 @default.
• W13891030 hasConceptScore W13891030C142724271 @default.
• W13891030 hasConceptScore W13891030C144024400 @default.
• W13891030 hasConceptScore W13891030C15744967 @default.
• W13891030 hasConceptScore W13891030C2779134260 @default.
• W13891030 hasConceptScore W13891030C2779304628 @default.
• W13891030 hasConceptScore W13891030C2779483572 @default.
• W13891030 hasConceptScore W13891030C36289849 @default.
• W13891030 hasConceptScore W13891030C71924100 @default.
• W13891030 hasConceptScore W13891030C78458016 @default.
• W13891030 hasConceptScore W13891030C86803240 @default.
• W13891030 hasIssue "1" @default.
• W13891030 hasLocation W138910301 @default.
• W13891030 hasOpenAccess W13891030 @default.
• W13891030 hasPrimaryLocation W138910301 @default.
• W13891030 hasRelatedWork W140594533 @default.
• W13891030 hasRelatedWork W1944611497 @default.
• W13891030 hasRelatedWork W1964450933 @default.
• W13891030 hasRelatedWork W1995291023 @default.
• W13891030 hasRelatedWork W2011306508 @default.
• W13891030 hasRelatedWork W2078670376 @default.
• W13891030 hasRelatedWork W2319109054 @default.
• W13891030 hasRelatedWork W2338655387 @default.
• W13891030 hasRelatedWork W237121720 @default.
• W13891030 hasRelatedWork W249723869 @default.
• W13891030 hasRelatedWork W266022674 @default.
• W13891030 hasRelatedWork W2736865724 @default.
• W13891030 hasRelatedWork W279601864 @default.
• W13891030 hasRelatedWork W289719318 @default.
• W13891030 hasRelatedWork W3036021600 @default.
• W13891030 hasRelatedWork W3049711683 @default.
• W13891030 hasRelatedWork W3193848661 @default.
• W13891030 hasRelatedWork W3197424107 @default.
• W13891030 hasRelatedWork W1898456414 @default.
• W13891030 hasRelatedWork W1909432950 @default.
• W13891030 hasVolume "33" @default.
• W13891030 isParatext "false" @default.
• W13891030 isRetracted "false" @default.
• W13891030 magId "13891030" @default.
• W13891030 workType "article" @default.