FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W1480687560> ?p ?o ?g. }

• W1480687560 abstract "Technological advances during the past 30 years have dramatically improved survival rates for children with life-threatening conditions (preterm births, congenital anomalies, disease, or injury) resulting in children with special health care needs (CSHCN), children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who require health and related services beyond that required by children generally. There are approximately 10.2 million of these children in the United States or one in five households with a child with special health care needs. Care for these children is limited to home care, medical day care (Prescribed Pediatric Extended Care; P-PEC) or a long term care (LTC) facility. There is very limited research examining health outcomes of CSHCN and their families. The purpose of this research was to compare the effects of home care settings, P-PEC settings, and LTC settings on child health and functioning, family health and function, and health care service use of families with CSHCN. Eighty four CSHCN ages 2 to 21 years having a medically fragile or complex medical condition that required continual monitoring were enrolled with their parents/guardians. Interviews were conducted monthly for five months using the PedsQL TM Generic Core Module for child health and functioning, PedsQL TM Family Impact Module for family health and functioning, and Access to Care from the NS-CSHCN survey for health care services. Descriptive statistics, chi square, and ANCOVA were conducted to determine differences across care settings. Children in the P-PEC settings had a highest health care quality of life (HRQL) overall including physical and psychosocial functioning. Parents/guardians with CSHCN in LTC had the highest HRQL including having time and energy for a social life and employment. Parents/guardians with CSHCN in home care settings had the poorest HRQL including physical and psychosocial functioning with cognitive difficulties, difficulties with worry, communication, and daily activities. They had the fewest hours of employment and the most hours providing direct care for their children. Overall health care service use was the same across the care settings." @default.
• W1480687560 created "2016-06-24" @default.
• W1480687560 creator A5026915561 @default.
• W1480687560 date "2017-11-13" @default.
• W1480687560 modified "2023-09-28" @default.
• W1480687560 title "Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use" @default.
• W1480687560 cites W110580798 @default.
• W1480687560 cites W123077144 @default.
• W1480687560 cites W129432184 @default.
• W1480687560 cites W1525120167 @default.
• W1480687560 cites W1533828214 @default.
• W1480687560 cites W1534196138 @default.
• W1480687560 cites W1964641797 @default.
• W1480687560 cites W1966561266 @default.
• W1480687560 cites W1966694001 @default.
• W1480687560 cites W1967808012 @default.
• W1480687560 cites W1968075269 @default.
• W1480687560 cites W1969118273 @default.
• W1480687560 cites W1974063634 @default.
• W1480687560 cites W1974283806 @default.
• W1480687560 cites W1976264709 @default.
• W1480687560 cites W1977109552 @default.
• W1480687560 cites W1982141207 @default.
• W1480687560 cites W1982644748 @default.
• W1480687560 cites W1989908156 @default.
• W1480687560 cites W1994091828 @default.
• W1480687560 cites W1999457392 @default.
• W1480687560 cites W2005243618 @default.
• W1480687560 cites W2006381156 @default.
• W1480687560 cites W2009966252 @default.
• W1480687560 cites W2010067869 @default.
• W1480687560 cites W2016816371 @default.
• W1480687560 cites W2022647111 @default.
• W1480687560 cites W2024381137 @default.
• W1480687560 cites W2029506966 @default.
• W1480687560 cites W2031936178 @default.
• W1480687560 cites W2032681132 @default.
• W1480687560 cites W2032932025 @default.
• W1480687560 cites W2032949853 @default.
• W1480687560 cites W2034605192 @default.
• W1480687560 cites W2034617105 @default.
• W1480687560 cites W2037470644 @default.
• W1480687560 cites W2040322182 @default.
• W1480687560 cites W2042161859 @default.
• W1480687560 cites W2042882678 @default.
• W1480687560 cites W2045494289 @default.
• W1480687560 cites W2047375462 @default.
• W1480687560 cites W2049900155 @default.
• W1480687560 cites W2050878694 @default.
• W1480687560 cites W2059623909 @default.
• W1480687560 cites W2060207250 @default.
• W1480687560 cites W2061814941 @default.
• W1480687560 cites W2062574684 @default.
• W1480687560 cites W2068941318 @default.
• W1480687560 cites W2076233525 @default.
• W1480687560 cites W2079684937 @default.
• W1480687560 cites W2089086175 @default.
• W1480687560 cites W2090826299 @default.
• W1480687560 cites W2092033060 @default.
• W1480687560 cites W2092351994 @default.
• W1480687560 cites W2093925162 @default.
• W1480687560 cites W2095257004 @default.
• W1480687560 cites W2099491410 @default.
• W1480687560 cites W2100679807 @default.
• W1480687560 cites W2107688496 @default.
• W1480687560 cites W2109956329 @default.
• W1480687560 cites W2115251441 @default.
• W1480687560 cites W2115323331 @default.
• W1480687560 cites W2116769819 @default.
• W1480687560 cites W2118206477 @default.
• W1480687560 cites W2118728894 @default.
• W1480687560 cites W2120102279 @default.
• W1480687560 cites W2120682052 @default.
• W1480687560 cites W2121589271 @default.
• W1480687560 cites W2122176763 @default.
• W1480687560 cites W2122967020 @default.
• W1480687560 cites W2132531310 @default.
• W1480687560 cites W2134224568 @default.
• W1480687560 cites W2134644533 @default.
• W1480687560 cites W2136271495 @default.
• W1480687560 cites W2136577660 @default.
• W1480687560 cites W2138452848 @default.
• W1480687560 cites W2138702343 @default.
• W1480687560 cites W2140816688 @default.
• W1480687560 cites W2141298915 @default.
• W1480687560 cites W2141318317 @default.
• W1480687560 cites W2145571956 @default.
• W1480687560 cites W2145784497 @default.
• W1480687560 cites W2151020421 @default.
• W1480687560 cites W2151335800 @default.
• W1480687560 cites W2154839228 @default.
• W1480687560 cites W2155392250 @default.
• W1480687560 cites W2159842440 @default.
• W1480687560 cites W2160179456 @default.
• W1480687560 cites W2163108772 @default.
• W1480687560 cites W2168565683 @default.
• W1480687560 cites W2291662678 @default.
• W1480687560 cites W2323538669 @default.
• W1480687560 cites W2400743268 @default.
• W1480687560 cites W3125829167 @default.

• next