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- W1503666645 abstract "OBJECTIVE: The purpose of this study is to determine how comfortable patients and their caregivers are with discussing future directives with clinic staff, and to assess the level of knowledge that clinicians have about palliative care and ask about their comfort levels in having palliative care discussions with terminally ill patients.BACKGROUND: ALS is a devastating terminal neurodegenerative disease that follows a predictable clinical trajectory, as such palliative care consultation should begin soon after diagnosis. Authors Temel et al. 2010 found that in a randomized trial the introduction of palliative care early after diagnosis for patients with metastatic non-small-cell lung cancer increased median survival and increased quality of life vs. patients assigned to standard of care. However, currently clinicians and patients tend to avoid palliative care discussions until the final stages of disease progression and deterioration largely due to the stigmas associated with palliative care.DESIGN/METHODS: Study population includes patients with ALS, their caregivers, and the ALS multidisciplinary clinic team. A questionnaire containing 10 questions was administered to patients and their caregivers during clinic to assess their comfort in addressing future concerns with the clinic team. A separate questionnaire containing nine questions was given to clinic staff to assess the level of general understanding of palliative care and its treatment goals. We analyzed the patient responses to characterize their general experiences in our clinic, and accounted for the clinicians responses of their general knowledge level of palliative care.RESULTS: PendingCONCLUSIONS: Palliative care seeks help from many sources typically found in multidisciplinary clinics to guide terminally patients through their care options. By addressing misconceptions in palliative care thought by clinicians and seeking answers from patients and their caregivers about future planning, we hope to discover when patients want to begin discussions about advanced directives and treatment goals throughout their disease. Disclosure: Dr. Kaplan has nothing to disclose." @default.
- W1503666645 created "2016-06-24" @default.
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- W1503666645 date "2015-04-06" @default.
- W1503666645 modified "2023-09-22" @default.
- W1503666645 title "Exploring Misconceptions in Palliative Care in a Multi-Disciplinary ALS Clinic (P3.319)" @default.
- W1503666645 hasPublicationYear "2015" @default.
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