FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W1567618031> ?p ?o ?g. }

• W1567618031 endingPage "420" @default.
• W1567618031 startingPage "397" @default.
• W1567618031 abstract "Purpose – The purpose of this paper is to raise issues about the design of personal health record systems (PHRs) and self-monitoring technology supporting self-care practices of an increasing number of individuals dealing with the management of a chronic disease in everyday life. It discusses the results of an ethnographic study exposing to analysis the intricacies and practicalities of managing diabetes “in the wild”. It then describe and discuss the patient-centric design of a diabetes journaling platform that followed the analysis. Design/methodology/approach – The study includes ethnometodological investigation based on in depth interviews, observations in a support group for adults with type 1 diabetes, home visits, shadowing sessions and semi-structured interviews with a series of medical experts (endocrinologists, general practitioners and diabetes nurses). Findings informed the design of a proof-of-concept PHR called Tag-it-Yourself (TiY): a mobile journaling platform that enables the personalization of self-monitoring practices. The platform is thoroughly described along with an evaluation of its use with real users. Findings – The investigation sheds light on a series of general characters of everyday chronic self-care practices, and how they ask to re-think some of the assumptions and connotations of the current medical model and the traditional sick role of the patient – often unreflectively assumed also in the design of personal technologies (e.g. PHR) to be used by patients in clinically un-controlled settings. In particular, the analysis discusses: the ubiquitous nature of diabetes that is better seen as a lifestyle, the key role of lay expertises and different forms of knowledge developed by the patient in dealing with a disease on a daily basis, and the need of more symmetrical interactions and collaborations with the medical experts. Research limitations/implications – Reported discussions suggest the need of a more holistic view of self-management of chronic disease in everyday life with more attention being paid on the perspective of the affected individuals. Findings have potential implications on the way PHR and systems to support self-management of chronic disease in everyday life are conceived and designed. Practical implications – The paper suggests designers and policy makers to look at chronic disease not as a medical condition to be disciplined by a clinical perspective but rather as a complex life-style where the medical cannot be separated by other aspects of everyday life. Such shift in the perspective might suggest new forms of collaborations, new ways of creative evidence and new form of knowledge creation and validation in chronic self-care. Social implications – The paper suggests re-thinking the role of the patient in chronic-disease self-management. In particular, it suggests giving more room to the patient voice and concerns and suggest how these can enrich rather than complicate the generation of knowledge about self-care practices, at least in type 1 diabetes. Originality/value – The paper sheds light on everyday intricacies and practicalities of dealing with a chronic disease. Studies of self-care practices that shed light on the patient perspectives are sporadic and often assume a clinical perspective, its assumptions (e.g. biomedical knowledge is the only one available to improve health outcome, doctors know best) and implications (e.g. compliance, asymmetry between the specialist and the patient)." @default.
• W1567618031 created "2016-06-24" @default.
• W1567618031 creator A5008051293 @default.
• W1567618031 date "2014-10-28" @default.
• W1567618031 modified "2023-09-26" @default.
• W1567618031 title "Diabetes self-care in-the-wild" @default.
• W1567618031 cites W1489993032 @default.
• W1567618031 cites W1971611868 @default.
• W1567618031 cites W1971903992 @default.
• W1567618031 cites W1974878083 @default.
• W1567618031 cites W1983387844 @default.
• W1567618031 cites W1986829431 @default.
• W1567618031 cites W2002851739 @default.
• W1567618031 cites W2003879393 @default.
• W1567618031 cites W2018035372 @default.
• W1567618031 cites W2018311576 @default.
• W1567618031 cites W2022880667 @default.
• W1567618031 cites W2024925720 @default.
• W1567618031 cites W2027836888 @default.
• W1567618031 cites W2028902836 @default.
• W1567618031 cites W2036702574 @default.
• W1567618031 cites W2044755665 @default.
• W1567618031 cites W2051103056 @default.
• W1567618031 cites W2052354921 @default.
• W1567618031 cites W2063014098 @default.
• W1567618031 cites W2076406125 @default.
• W1567618031 cites W2078693525 @default.
• W1567618031 cites W2091855139 @default.
• W1567618031 cites W2099599720 @default.
• W1567618031 cites W2103363641 @default.
• W1567618031 cites W2105689781 @default.
• W1567618031 cites W2107200188 @default.
• W1567618031 cites W2107498206 @default.
• W1567618031 cites W2112485413 @default.
• W1567618031 cites W2137767448 @default.
• W1567618031 cites W2139255591 @default.
• W1567618031 cites W2142477234 @default.
• W1567618031 cites W2147422639 @default.
• W1567618031 cites W2162406531 @default.
• W1567618031 cites W2167407276 @default.
• W1567618031 cites W4234814513 @default.
• W1567618031 cites W4244383376 @default.
• W1567618031 cites W76207480 @default.
• W1567618031 doi "https://doi.org/10.1108/itp-02-2013-0032" @default.
• W1567618031 hasPublicationYear "2014" @default.
• W1567618031 type Work @default.
• W1567618031 sameAs 1567618031 @default.
• W1567618031 citedByCount "19" @default.
• W1567618031 countsByYear W15676180312015 @default.
• W1567618031 countsByYear W15676180312016 @default.
• W1567618031 countsByYear W15676180312017 @default.
• W1567618031 countsByYear W15676180312018 @default.
• W1567618031 countsByYear W15676180312019 @default.
• W1567618031 countsByYear W15676180312020 @default.
• W1567618031 countsByYear W15676180312022 @default.
• W1567618031 crossrefType "journal-article" @default.
• W1567618031 hasAuthorship W1567618031A5008051293 @default.
• W1567618031 hasConcept C108827166 @default.
• W1567618031 hasConcept C134018914 @default.
• W1567618031 hasConcept C136764020 @default.
• W1567618031 hasConcept C144024400 @default.
• W1567618031 hasConcept C15744967 @default.
• W1567618031 hasConcept C159110408 @default.
• W1567618031 hasConcept C171730128 @default.
• W1567618031 hasConcept C17744445 @default.
• W1567618031 hasConcept C183003079 @default.
• W1567618031 hasConcept C190248442 @default.
• W1567618031 hasConcept C199539241 @default.
• W1567618031 hasConcept C2225880 @default.
• W1567618031 hasConcept C2776217022 @default.
• W1567618031 hasConcept C2777180221 @default.
• W1567618031 hasConcept C2779018934 @default.
• W1567618031 hasConcept C36289849 @default.
• W1567618031 hasConcept C41008148 @default.
• W1567618031 hasConcept C509550671 @default.
• W1567618031 hasConcept C555293320 @default.
• W1567618031 hasConcept C71924100 @default.
• W1567618031 hasConcept C74909509 @default.
• W1567618031 hasConcept C77088390 @default.
• W1567618031 hasConceptScore W1567618031C108827166 @default.
• W1567618031 hasConceptScore W1567618031C134018914 @default.
• W1567618031 hasConceptScore W1567618031C136764020 @default.
• W1567618031 hasConceptScore W1567618031C144024400 @default.
• W1567618031 hasConceptScore W1567618031C15744967 @default.
• W1567618031 hasConceptScore W1567618031C159110408 @default.
• W1567618031 hasConceptScore W1567618031C171730128 @default.
• W1567618031 hasConceptScore W1567618031C17744445 @default.
• W1567618031 hasConceptScore W1567618031C183003079 @default.
• W1567618031 hasConceptScore W1567618031C190248442 @default.
• W1567618031 hasConceptScore W1567618031C199539241 @default.
• W1567618031 hasConceptScore W1567618031C2225880 @default.
• W1567618031 hasConceptScore W1567618031C2776217022 @default.
• W1567618031 hasConceptScore W1567618031C2777180221 @default.
• W1567618031 hasConceptScore W1567618031C2779018934 @default.
• W1567618031 hasConceptScore W1567618031C36289849 @default.
• W1567618031 hasConceptScore W1567618031C41008148 @default.
• W1567618031 hasConceptScore W1567618031C509550671 @default.
• W1567618031 hasConceptScore W1567618031C555293320 @default.

• next