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- W1584469428 abstract "Communicating with consumers about disease or the risk of disease acquired during the course of medical treatment is a sensitive undertaking. Notification of exposure to the risk of rare and fatal neurological diseases, such as Creutzfeldt–Jakob disease (CJD) or variant CJD (vCJD), can have far-reaching negative consequences, including confusion and psychological harm. It is therefore imperative that health services employ the best communication and support practices for people being notified that they have been exposed to this risk. This chapter examines the impacts of notifying people that they are at risk of CJD or vCJD as a result of medical treatment and of subsequent communication strategies. The chapter outlines a systematic review of the experiences, views and needs of people at medically acquired risk for CJD or vCJD and presents a framework which identifies how communication might best happen in these situations." @default.
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- W1584469428 date "2011-09-22" @default.
- W1584469428 modified "2023-09-30" @default.
- W1584469428 title "Disclosure: A Case Study of Communication about Medically Acquired Risk for a Rare Disease" @default.
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- W1584469428 doi "https://doi.org/10.1002/9781444346855.ch7" @default.
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