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- W1608283512 abstract "1. Making Good on the Promise of Genetics: Justice in Translational Sara Goering, Suzanne Holland, and Kelly A. Edwards 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo Patricia Kuszler 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter? Stephanie Malia Fullerton 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Holly K. Tabor and Martine Lappe Commentary on the Discovery Phase of Research Sara Goering, Suzanne Holland, and Kelly A. Edwards 5. Early Assessment of Translational Opportunities Patricia Deverka and David L. Veenstra 6. The power of knowledge: How carrier and prenatal screening altered the clinical goals of genetic testing Commentary on the Development Phase of the Translational Cycle 7. Integrating genetic tests into clinical practice: The role of guidelines Anne-Marie Laberge and Wylie Burke 8. Genomics and the Health Commons Nora Henrikson and Wylie Burke Commentary on the Delivery Phase of the Translational Cycle Sara Goering, Suzanne Holland, and Kelly A. Edwards 9. The Role of Advocacy in Newborn Screening Catharine Riley and Carolyn Watts 10. What Outcomes? Whose Benefits? Wylie Burke and Nancy Press Commentary on the Outcomes Phase of the Translational Cycle Sara Goering, Suzanne Holland, and Kelly A. Edwards 11. Bringing the Best Science to Bear on Youth Suicide: Why Community Perspectives Matter Rosalina James and Helene Starks 12. Conclusion Kelly A. Edwards, Sara Goering, Suzanne Holland and Maureen Kelley" @default.
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- W1608283512 date "2011-01-01" @default.
- W1608283512 modified "2023-09-24" @default.
- W1608283512 title "Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit" @default.
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