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- W1708881011 abstract "Background Modern healthcare espouses a culture of engagement, partnership and recognition of patient expertise a philosophy congruent with the model of care of those with CF Objectives To explore how young (CF) perceive partnership and negotiate care with the healthcare team. Methods In a qualitative descriptive study thirty three consultations were observed between eight patients (aged 19–34), two carers and twelve healthcare professionals (HCPs). Following the observed sessions the eight (plus two other) patients, two carers and eleven HCPs were interviewed. Data were analysed thematically using the five stages of Framework a matrix-based analysis approach and were subject to peer review and respondent validation. Results Three major themes emerged from the data: experiences of partnership, attributes of the expert patient and constructions of illness. This paper focuses on sub themes of transition, trust and choosing which battles to pick. Discussion HCPs find relationship-building with transitioning adolescents challenging and are reluctant to trust patient's accounts of treatment adherence. HCPs are seen as too soft in negotiation but choose to relinquish some battles in order to win the long game, build trust and achieve optimal adherence. Implications for practice suggest the need for ground rules outlining both parties' roles and responsibilities in partnership and consideration of new consultation methods." @default.
- W1708881011 created "2016-06-24" @default.
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- W1708881011 date "2015-06-01" @default.
- W1708881011 modified "2023-09-26" @default.
- W1708881011 title "WS03.4 Trust, transition and choosing your battles: An exploration of partnership between young expert patients with CF and the healthcare team" @default.
- W1708881011 doi "https://doi.org/10.1016/s1569-1993(15)30018-7" @default.
- W1708881011 hasPublicationYear "2015" @default.
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