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• W1782628305 abstract "Remote technology provides an opportunity to extend the reach of clinical care and research for pediatric rare disease. This pilot study evaluated the feasibility and reliability of neuropsychological evaluation, using remote audiovisual technology, in the assessment of children with juvenile Batten disease. Three children with Batten disease and 1 healthy sibling completed a standardized cognitive assessment. Results indicated high agreement between an in-person and a remote evaluator when comparing the subjects’ cognitive test scores. This initial test of remote cognitive assessment suggests it is feasible and reliable in children with pediatric neurodegenerative disease, for whom disease burden may limit travel and access to expert care and/or clinical trials." @default.
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• W1782628305 date "2015-09-02" @default.
• W1782628305 modified "2023-10-18" @default.
• W1782628305 title "Remote Assessment of Cognitive Function in Juvenile Neuronal Ceroid Lipofuscinosis (Batten disease)" @default.
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• W1782628305 doi "https://doi.org/10.1177/0883073815600863" @default.
• W1782628305 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4749443" @default.
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