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- W1875402496 abstract "Head and neck cancer is the sixth most common cancer in the world. Though a relatively small number overall, the treatment modalities are extensive and the residual effect from surgery is significant, often resulting in permanent dysfunction and/or disfigurement. The psychological impact is great and extends beyond the individual and the length of admission. This paper presents the findings of a qualitative study designed to explore and understand the experiences and needs of patients having undergone major reconstructive surgery and gaps in service. In-depth interviews were conducted with twelve patients who were seven to twenty-six months post-surgery. An interview schedule was prepared in consultation with three consumers and subsequently, each interview was analysed to elicit descriptions of experiences from diagnosis through surgery and beyond. Participants identified difficulties associated with insufficient, confusing and often untimely information, negotiating significant, recurring and unrelenting treatment related challenges and dealing with their changed circumstances after surgery. Families and carers played a significant role in helping participants cope. Findings indicate a need for greater patient and family involvement in the design of treatment programs that have an emphasis on coping with the aftermath of treatment. The findings are informing the development of a revised clinical pathway currently undergoing trial and the production of a pre-operative education DVD." @default.
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- W1875402496 date "2013-01-01" @default.
- W1875402496 modified "2023-09-27" @default.
- W1875402496 title "Meeting the needs of head and neck cancer patients undergoing major surgery" @default.
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