FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W1913244076> ?p ?o ?g. }

• W1913244076 endingPage "59" @default.
• W1913244076 startingPage "51" @default.
• W1913244076 abstract "To explore the informational needs of patients with anti-neutrophil cytoplasmic antibody-associated vasculitis (AAV).Three focus groups and eight one-to-one interviews were conducted with patients with AAV. A purposeful sample of 15 patients (ten female) [disease: three Churg-Strauss syndrome (CSS); nine granulomatosis with polyangiitis (GPA); one microscopic polyangiitis (MPA); two polyarteritis nodosa (PAN)] participated in the focus groups. Eight (five female) (disease: three CSS; four GPA; one MPA) participated in the one-to-one interviews. A semi-structured interview guide was used to explore patients' experiences of informational needs. The focus groups and interviews were audio-recorded and transcribed verbatim, and analysed using the framework technique.Emergent themes were: reaction to diagnosis, need for information on disease management and access to knowledgeable practitioners. When given the initial diagnosis, all patients described themselves as being too ill to take in information and that they later found it difficult to find information. Most information received at diagnosis was in the form of verbal information given by the hospital doctor. Patients wanted positive but truthful information in the form of a booklet.Receiving the diagnosis of a rare, potentially life-threatening disease and then dealing with its complex treatment causes anxiety and fear and can impede information retention and recall. Patients want information on diagnosis and treatment but this should be tailored to individual needs, including timing that is appropriate for them. All patients wanted the opportunity to discuss their illness and its management with a knowledgeable healthcare practitioner but also wanted printed forms of information to assimilate at their own pace." @default.
• W1913244076 created "2016-06-24" @default.
• W1913244076 creator A5000277027 @default.
• W1913244076 creator A5003005694 @default.
• W1913244076 creator A5032136492 @default.
• W1913244076 creator A5038541646 @default.
• W1913244076 creator A5042139554 @default.
• W1913244076 date "2012-07-09" @default.
• W1913244076 modified "2023-10-18" @default.
• W1913244076 title "‘In One Ear and Out the Other - It's a Lot to Take in’: A Qualitative Study Exploring the Informational Needs of Patients with ANCA-Associated Vasculitis" @default.
• W1913244076 cites W1841666489 @default.
• W1913244076 cites W1964243735 @default.
• W1913244076 cites W1965940623 @default.
• W1913244076 cites W1987943231 @default.
• W1913244076 cites W1988427509 @default.
• W1913244076 cites W1992450493 @default.
• W1913244076 cites W2020654688 @default.
• W1913244076 cites W2043488985 @default.
• W1913244076 cites W2049761599 @default.
• W1913244076 cites W2053738891 @default.
• W1913244076 cites W2056786634 @default.
• W1913244076 cites W2071389309 @default.
• W1913244076 cites W2084375627 @default.
• W1913244076 cites W2104971230 @default.
• W1913244076 cites W2110228949 @default.
• W1913244076 cites W2121602116 @default.
• W1913244076 cites W2131153587 @default.
• W1913244076 cites W2132795660 @default.
• W1913244076 cites W2150534327 @default.
• W1913244076 cites W2158971557 @default.
• W1913244076 cites W2171950933 @default.
• W1913244076 cites W2264075806 @default.
• W1913244076 cites W2318162583 @default.
• W1913244076 cites W4250976518 @default.
• W1913244076 doi "https://doi.org/10.1002/msc.1030" @default.
• W1913244076 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/22778039" @default.
• W1913244076 hasPublicationYear "2012" @default.
• W1913244076 type Work @default.
• W1913244076 sameAs 1913244076 @default.
• W1913244076 citedByCount "19" @default.
• W1913244076 countsByYear W19132440762014 @default.
• W1913244076 countsByYear W19132440762015 @default.
• W1913244076 countsByYear W19132440762017 @default.
• W1913244076 countsByYear W19132440762018 @default.
• W1913244076 countsByYear W19132440762019 @default.
• W1913244076 countsByYear W19132440762020 @default.
• W1913244076 countsByYear W19132440762021 @default.
• W1913244076 countsByYear W19132440762022 @default.
• W1913244076 countsByYear W19132440762023 @default.
• W1913244076 crossrefType "journal-article" @default.
• W1913244076 hasAuthorship W1913244076A5000277027 @default.
• W1913244076 hasAuthorship W1913244076A5003005694 @default.
• W1913244076 hasAuthorship W1913244076A5032136492 @default.
• W1913244076 hasAuthorship W1913244076A5038541646 @default.
• W1913244076 hasAuthorship W1913244076A5042139554 @default.
• W1913244076 hasConcept C118552586 @default.
• W1913244076 hasConcept C136764020 @default.
• W1913244076 hasConcept C142724271 @default.
• W1913244076 hasConcept C144024400 @default.
• W1913244076 hasConcept C144133560 @default.
• W1913244076 hasConcept C15744967 @default.
• W1913244076 hasConcept C160735492 @default.
• W1913244076 hasConcept C162324750 @default.
• W1913244076 hasConcept C162853370 @default.
• W1913244076 hasConcept C177291462 @default.
• W1913244076 hasConcept C190248442 @default.
• W1913244076 hasConcept C2776015282 @default.
• W1913244076 hasConcept C2778910314 @default.
• W1913244076 hasConcept C2779134260 @default.
• W1913244076 hasConcept C2781229154 @default.
• W1913244076 hasConcept C36289849 @default.
• W1913244076 hasConcept C41008148 @default.
• W1913244076 hasConcept C50522688 @default.
• W1913244076 hasConcept C512399662 @default.
• W1913244076 hasConcept C542102704 @default.
• W1913244076 hasConcept C558461103 @default.
• W1913244076 hasConcept C56995899 @default.
• W1913244076 hasConcept C71924100 @default.
• W1913244076 hasConcept C78999398 @default.
• W1913244076 hasConceptScore W1913244076C118552586 @default.
• W1913244076 hasConceptScore W1913244076C136764020 @default.
• W1913244076 hasConceptScore W1913244076C142724271 @default.
• W1913244076 hasConceptScore W1913244076C144024400 @default.
• W1913244076 hasConceptScore W1913244076C144133560 @default.
• W1913244076 hasConceptScore W1913244076C15744967 @default.
• W1913244076 hasConceptScore W1913244076C160735492 @default.
• W1913244076 hasConceptScore W1913244076C162324750 @default.
• W1913244076 hasConceptScore W1913244076C162853370 @default.
• W1913244076 hasConceptScore W1913244076C177291462 @default.
• W1913244076 hasConceptScore W1913244076C190248442 @default.
• W1913244076 hasConceptScore W1913244076C2776015282 @default.
• W1913244076 hasConceptScore W1913244076C2778910314 @default.
• W1913244076 hasConceptScore W1913244076C2779134260 @default.
• W1913244076 hasConceptScore W1913244076C2781229154 @default.
• W1913244076 hasConceptScore W1913244076C36289849 @default.
• W1913244076 hasConceptScore W1913244076C41008148 @default.
• W1913244076 hasConceptScore W1913244076C50522688 @default.
• W1913244076 hasConceptScore W1913244076C512399662 @default.

• next