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• W1924154908 abstract "Objective The purpose of the study was to investigate children's perspectives of living with chronic lung disease (CLD) and their parents' long-term experiences of caring for them. Background CLD caused by prematurity of birth is associated with continuing respiratory, neuro-developmental and psychosocial issues. Methods 10 children (6–15 years old) with CLD and 12 parents were involved in semi-structured qualitative interviews. Data were analyzed using thematic analysis. Results CLD was described as ‘getting easier over time’ and that you ‘learnt to live with it.’ Expertise was acquired in controlling symptoms and recognizing the onset of illness, despite expressed uncertainty of the nature of the condition. Children experienced difficulties engaging in peer activities and encountered cases of teasing and isolation at school. Conclusion CLD was reported as becoming easier over time to live with. Despite this, children experienced challenges engaging in peer activities and families described difficulties interacting with health and education services." @default.
• W1924154908 created "2016-06-24" @default.
• W1924154908 creator A5064274990 @default.
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• W1924154908 date "2015-11-01" @default.
• W1924154908 modified "2023-09-27" @default.
• W1924154908 title "Living and managing with the long-term implications of neonatal chronic lung disease: The experiences and perspectives of children and their parents" @default.
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• W1924154908 doi "https://doi.org/10.1016/j.hrtlng.2015.08.002" @default.
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