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- W1961188441 abstract "Initiativestobuildbigdata to informand improvethequalityofcancercaredelivery in theUnitedStatesareevolvingrapidly.Advances in informationtechnologyhavemade it increasinglymore feasible toefficientlycollectclinicaldataacross facilitiesand institutionstoaddress challenges related to access, delivery, anddisparities in care. TheNational Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER)programisuniquelypositionedintheUnitedStatesto leverage bigdatato informoncologypractice inthecommunity.Theparticipatingregional registriescompriseapopulationthat isdiverseandrepresentative of the United States. The registries have unique state data agreementsandhealthcarefacilitypartnerships(hospitalsandpathology laboratories) that enable them to collect uniformvalid clinical informationaboutthefirstcourseofcancertreatmentforvirtuallyallpatientswhoreceivediagnoses in their regionalcatchmentareas.These data have been used bymany hundreds of investigators to generate morethan8000scientificarticles thataddressburdenofcancer,diseaseetiologyandbehavior,disparities incancerhealthoutcomes,and quality of oncology care. But there are some important limitations to SEERdata. First, the levelofdetailabouttestsandtreatments is limited.Forexample, information about adjuvant chemotherapy regimens is not routinely collected. Second, thequality and completeness of the clinical data that arecollectedmayvarybycancerconditionandacross regions.Finally, informationrelatedtopatientsocioeconomicstatus is limited.Forexample, SEERdata currently includepatient-level information for race andmarital statusbut not for income, education, or insurance status. JAMA" @default.
- W1961188441 created "2016-06-24" @default.
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- W1961188441 date "2015-08-01" @default.
- W1961188441 modified "2023-09-24" @default.
- W1961188441 title "Cancer Care Delivery Research and the National Cancer Institute SEER Program" @default.
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- W1961188441 doi "https://doi.org/10.1001/jamaoncol.2015.0764" @default.
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