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- W1963951125 abstract "Family carers are the most important source of dementia care, especially among ethnic minority populations, who are less likely to access health or social services. The evidence base on the experiences of people with dementia and family caregivers in these communities is profoundly limited. To explore the experience of people with dementia and caregiving attitudes, experiences and needs of informal carers of people with dementia from the three largest ethnic groups in the UK we completed a qualitative study. A qualitative study, using a grounded theory approach was completed. In-depth individual interviews were conducted with 31 carers of people with dementia (10 black Caribbean, 10 south Asian, 11 white British). Similar numbers of people with dementia and people without dementia from the three groups were also recruited. Interviews were tape-recorded, transcribed and transcribed using best quality qualitative methodology. The attitudes and beliefs of people with dementia differed by ethnicity. Carers were identified as holding a “traditional” or “non-traditional” caregiver ideology, according to whether they conceptualised caregiving as natural, expected and virtuous. This informed feelings of fulfillment, strain, carers’ fears and attitudes towards formal services. The majority of south Asian, half the black Caribbean and a minority of white British participants were found to possess a traditional ideology. These caregiver beliefs interacted with those of the people with dementia to generate barriers to help-seeking and help-accepting, but also avenues for positive engagement. The findings suggest that specific cultural attitudes towards dementia in those affected and in the caregiving role have important implications for how people with dementia and their carers can best be supported." @default.
- W1963951125 created "2016-06-24" @default.
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- W1963951125 date "2008-07-01" @default.
- W1963951125 modified "2023-09-27" @default.
- W1963951125 title "O2-07-04: A cross-cultural qualitative study of barriers and facilitators to good quality care for people with dementia" @default.
- W1963951125 doi "https://doi.org/10.1016/j.jalz.2008.05.361" @default.
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