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- W1978593713 abstract "Summary An adequate use of coping strategies could help patients to deal with disease‐related stress. The study aim was to explore coping behaviour in adult patients with severe haemophilia and its possible determinants. Coping was assessed through three basic dimensions (task‐oriented, emotion‐oriented and avoidance coping), using the short version of the Coping Inventory for Stressful Situations (CISS‐21). Patients' scores were compared with Dutch working men ( N = 374), according to three categories: low use (<P25 of normal), average use (P25–P75) and high use (>P75). Determinants were measured using questionnaires on activities (Haemophilia Activities List), participation (Impact on Participation and Autonomy Questionnaire), physical functioning [physical component of the Dutch Arthritis Impact Measurement Scales‐2 (D‐AIMS2)] and socio‐psychological health (psychological component of the D‐ AIMS 2). In total, 86 adults with severe haemophilia (FVIII/IX<1%) were included. The median age was 38 years (range: 18–68) with 85% affected with haemophilia A and 75% using prophylaxis. Patients with haemophilia used task‐oriented coping as frequently as the control group ( P = 0.13); but used significantly less emotion‐oriented coping (57% vs. 25%, P < 0.05) and avoidance coping ( P < 0.05). Emotion‐oriented coping showed a strong correlation with socio‐psychological health ( r = 0.67) and weak correlations with participation ( r = 0.32) and social interaction ( r = 0.29). Other associations of coping strategies with patient characteristics of health status could not be demonstrated. Overall, patients predominantly used the task‐oriented approach to deal with their disease; the use of this strategy was comparable to the control group. Having a poor psychological health, less social interaction and/or less participation in daily life was associated with an increased use of emotion‐oriented coping." @default.
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- W1978593713 date "2014-01-24" @default.
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- W1978593713 title "Coping in adult patients with severe haemophilia" @default.
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- W1978593713 doi "https://doi.org/10.1111/hae.12366" @default.
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