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- W1979164927 abstract "Child and adolescent BMT patients often participate in unit-based non-medical support activities, such as music, movement, and art, which provide them with opportunities to express their feelings and to cope with their illness experience. Our program offers these patients an additional and very unique opportunity to participate in an academic partnership that incorporates the tools of documentary photography and writing, as a way to increase their sense of mastery and control, enhance their self esteem and to explore their creativity. Since 1998, a pediatrician (and photographer) on faculty at Duke University Medical Center, has taught an undergraduate class at the University's Center for Documentary Studies, titled “Children and the Experience of Illness”. Each of the 12-14 college students in the class is paired with a child (age 8-18) who is undergoing treatment for a chronic or life-threatening illness. The students meet outside of class with patients one-on-one, teaching them how to use a camera and printer and supporting their creation of a portfolio of photos, often accompanied by written descriptions. In exchange, the students, many of whom are interested in careers in healthcare, are able to witness first-hand, a unique perspective of a child's life as they cope with severe illness. The class is enhanced by a PBMT Nurse Clinician who serves to educate the students about our transplant program, tours them on the medical units, and acts as the liaison in matching prospective patients with students. Our Clinical Social Worker plays an integral role by educating the class about the psychosocial needs of PBMT patients and families. The physician director of the PBMT program gives a lecture linking medical care with the life experiences of these patients. We have witnessed an overwhelming response from patients and their families wanting to participate in this unique project. Culmination of the patients' photos and writing are highlighted at a reception and presented in an exhibit on display in the hospital for personnel and visitors to view. The pride and tremendous accomplishment of each patient is extraordinary. For the undergraduate students, this experience is often the catalyst for their pursuit of a career in medicine, nursing or other allied health professions. The effect of this class on patients, staff, students and families goes beyond anything that can be described in words. You can see it – through the lens. Child and adolescent BMT patients often participate in unit-based non-medical support activities, such as music, movement, and art, which provide them with opportunities to express their feelings and to cope with their illness experience. Our program offers these patients an additional and very unique opportunity to participate in an academic partnership that incorporates the tools of documentary photography and writing, as a way to increase their sense of mastery and control, enhance their self esteem and to explore their creativity. Since 1998, a pediatrician (and photographer) on faculty at Duke University Medical Center, has taught an undergraduate class at the University's Center for Documentary Studies, titled “Children and the Experience of Illness”. Each of the 12-14 college students in the class is paired with a child (age 8-18) who is undergoing treatment for a chronic or life-threatening illness. The students meet outside of class with patients one-on-one, teaching them how to use a camera and printer and supporting their creation of a portfolio of photos, often accompanied by written descriptions. In exchange, the students, many of whom are interested in careers in healthcare, are able to witness first-hand, a unique perspective of a child's life as they cope with severe illness. The class is enhanced by a PBMT Nurse Clinician who serves to educate the students about our transplant program, tours them on the medical units, and acts as the liaison in matching prospective patients with students. Our Clinical Social Worker plays an integral role by educating the class about the psychosocial needs of PBMT patients and families. The physician director of the PBMT program gives a lecture linking medical care with the life experiences of these patients. We have witnessed an overwhelming response from patients and their families wanting to participate in this unique project. Culmination of the patients' photos and writing are highlighted at a reception and presented in an exhibit on display in the hospital for personnel and visitors to view. The pride and tremendous accomplishment of each patient is extraordinary. For the undergraduate students, this experience is often the catalyst for their pursuit of a career in medicine, nursing or other allied health professions. The effect of this class on patients, staff, students and families goes beyond anything that can be described in words. You can see it – through the lens." @default.
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- W1979164927 date "2011-02-01" @default.
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- W1979164927 title "Through the Lens: Engaging School-Age Children and Adolescent SCT Patients in an Academic Photography Project" @default.
- W1979164927 doi "https://doi.org/10.1016/j.bbmt.2010.12.642" @default.
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