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- W1979689354 abstract "Anecdotal information from families and health care providers suggests a wide variation in services received by patients with DBMD. To document the type, frequency and setting of rehabilitation related therapy services received by patients with DBMD in population based samples from four states. The MDSTARNet is a multistate collaboration that conducts population based surveillance for individuals with DBMD and annual surveys with their primary caregivers. From April 2007 to May 2008, 372 eligible caregivers from four states (AZ, CO, IA and western NY) were identified. Two hundred (53.7%) completed a telephone interview. The interview included questions about the type of provider seen including- physical therapist (PT), occupational therapist (OT) and speech therapist (ST) and the frequency and location (clinic, home, school) of services received over the past 12 months. Frequencies among states were compared with χ2 tests. Statistical significance was set at p < 0.05. The caregivers reported receipt of PT (72%), OT (39%) and ST (17%) services. School was reported most frequently as the setting where PT (47%), OT (78%) and ST (89%) services where received. There were significant differences among states in regards to the location of receipt of physical therapy services. The results of this population based survey document and support the anecdotal information from families and providers regarding variation in services." @default.
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- W1979689354 date "2011-10-01" @default.
- W1979689354 modified "2023-10-14" @default.
- W1979689354 title "P1.53 Rehabilitation therapy services received by patients with Duchenne/Becker muscular dystrophy (DBMD): Data from the muscular dystrophy surveillance, tracking and research network (MDSTARNet)" @default.
- W1979689354 doi "https://doi.org/10.1016/j.nmd.2011.06.813" @default.
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