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• W1981879244 abstract "No AccessJournal of UrologyOutcomes research1 Oct 2007Sexual Function in Adult Patients With Spina Bifida and its Impact on Quality of Life Jenny Lassmann, Francisco Garibay Gonzalez, Jeanne B. Melchionni, Patrick S. Pasquariello, and Howard M. Snyder Jenny LassmannJenny Lassmann More articles by this author , Francisco Garibay GonzalezFrancisco Garibay Gonzalez More articles by this author , Jeanne B. MelchionniJeanne B. Melchionni More articles by this author , Patrick S. PasquarielloPatrick S. Pasquariello More articles by this author , and Howard M. SnyderHoward M. Snyder More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2007.03.162AboutFull TextPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract Purpose: We evaluated sexual function in adult patients with spina bifida and its impact on quality of life. Materials and Methods: Between March 2005 and May 2006, 76 adult patients with spina bifida, including 34 women and 42 men, with a mean age of 24.4 years (range 18 to 37) were seen for followup at our institution. Following institutional review board approval data were collected from medical records and validated questionnaires were completed, including the Watts Sexual Function Questionnaire to assess sexual function and SF-36™ to assess quality of life. Results: Of the 76 patients 18 (24%), including 9 women and 9 men, achieved sexual intercourse at least once in the last 2 months. There was no difference regarding gender distribution and mean age ± SD in sexually active vs not sexually active patients (25.8 ± 4.2 vs 24 ± 4.5 years, p = 0.13). All levels (thoracic to sacral) of myelomeningocele were seen in the 2 groups with significant higher lesions of neurological impairment in not sexually active than in sexually active patients. No difference was seen in relation to ambulatory status and urinary incontinence. Overall total Watts Sexual Function Questionnaire scores in sexually active patients were similar in men and women. When comparing the 4 domain scores on desire, arousal, orgasm and satisfaction, women scored similar to men. Only 2 men tried to achieve paternity but failed and 1 woman gave birth. When evaluating SF-36 for quality of life, there was no significant difference in physical health (42.4 ± 11.9 vs 38.7 ± 7.2, p = 0.11) and mental health (54.1 ± 11.3 vs 58.6 ± 10.7, p = 0.12) subscores in sexually active vs not sexually active patients. Conclusions: In our cohort 24% of adult patients with spina bifida were sexually active. Sexual activity was not related to gender, level of urinary incontinence or extent of physical disability but it was more likely in patients with more caudal levels of neurological impairment. Sexual function seems not to affect health related quality of life in these patients. References 1 : Prevalence of spina bifida at birth—United States, 1983–1990: a comparison of two surveillance systems. MMWR CDC Surveill Summ1996; 45: 15. Google Scholar 2 : Long-term outcome in open spina bifida. Br J Gen Pract2003; 53: 632. Google Scholar 3 : Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg2001; 34: 114. Google Scholar 4 : Severity of illness, functional status, and HRQOL in youth with spina bifida. Rehabil Nurs2005; 30: 180. Google Scholar 5 : Quality of life and continence in patients with spina bifida. Qual Life Res2006; 15: 1481. Google Scholar 6 : Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics1991; 88: 280. Google Scholar 7 : Reproductive understanding, sexual functioning and testosterone levels in men with spina bifida. J Urol1997; 157: 1466. 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Google Scholar 15 : Sexual function in adults with myelomeningocele. J Urol1986; 136: 425. Link, Google Scholar 16 : Sexual and reproductive health in young people with spina bifida. Dev Med Child Neurol1999; 41: 671. Google Scholar 17 : SF-36 Physical and Mental Health Scales: A Manual for Users. Lincoln, Rhode Island: Quality Metric2001. Google Scholar 18 : Validity and reliability of the MSQLI in cognitively impaired patients with multiple sclerosis. Mult Scler2003; 9: 621. Google Scholar 19 : Intelligence and achievement in children with myelomeningocele. J Pediatr Psychol1990; 15: 161. Google Scholar Division of Urology, Department of General Pediatrics (JBM, PSP), Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania© 2007 by American Urological AssociationFiguresReferencesRelatedDetailsCited byOvergoor M, de Jong T, Cohen-Kettenis P, Edens M and Kon M (2018) Increased Sexual Health After Restored Genital Sensation in Male Patients with Spina Bifida or a Spinal Cord Injury: the TOMAX ProcedureJournal of Urology, VOL. 189, NO. 2, (626-632), Online publication date: 1-Feb-2013.MacNeily A, Jafari S, Scott H, Dalgetty A and Afshar K (2009) Health Related Quality of Life in Patients With Spina Bifida: A Prospective Assessment Before and After Lower Urinary Tract ReconstructionJournal of Urology, VOL. 182, NO. 4S, (1984-1992), Online publication date: 1-Oct-2009. Volume 178Issue 4SOctober 2007Page: 1611-1614 Advertisement Copyright & Permissions© 2007 by American Urological AssociationKeywordsspina bifida in adultsquality of lifesexual functionMetricsAuthor Information Jenny Lassmann More articles by this author Francisco Garibay Gonzalez More articles by this author Jeanne B. Melchionni More articles by this author Patrick S. Pasquariello More articles by this author Howard M. Snyder More articles by this author Expand All Advertisement PDF downloadLoading ..." @default.
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