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- W1988514043 abstract "Along with the medical and technical intensive care supply it is very important for our unit to provide competent attendance to dying patients and their families. In our team we have a huge repertoire of ways to accompany the dying child and it's family. As yet no written policy or guideline exists and therefore the value of this experience for teaching is limited. That's why we aim to develop a reference work for terminal care of children and their families. The know-how within the unit is collected by use of questionnaires, team events, daily feedback rounds and feedback from parents. Expert knowledge is added by two nurses, specially trained in the support of the grieving process and from an interdisciplinary team consisting of pastoral care, psychiatry, social services and funeral services. Scientific literature supplements the experiences and the expert knowledge. The concept is essentially based on personal experience and expert knowledge with the main focus on practical issues such as “Support of the grieving family” and “Care of the dying child”. Although there is an extensive list of literature covering this topic, only few publications show concrete recommendations related to practice. Feedback from affected families show that our approach is supportive in their grieving process. This confirms that we cover the family's needs with our work. We plan to implement our concept by the end of this year by means of teaching sessions and workshops. A first evaluation will be performed one year after implementation." @default.
- W1988514043 created "2016-06-24" @default.
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- W1988514043 date "2010-11-01" @default.
- W1988514043 modified "2023-09-27" @default.
- W1988514043 title "753 Encouraging the Family in Dying Infants: A Concept for Terminal Care of Infants and Children" @default.
- W1988514043 doi "https://doi.org/10.1203/00006450-201011001-00753" @default.
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