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• W1996583433 abstract "A research biobank is a collection of personal health and lifestyle information, including genetic samples of yet unknown but possibly large information potential about the participant. For the participants, the risk of taking part is not bodily harm but infringements of their privacy and the harmful consequences such infringements might have. But what do we mean by privacy? Which harms are we talking about? To address such questions we need to get a grip on what privacy is all about and aim for a fruitful perspective on the issues of property and privacy rights in the context of biobanking. This paper argues that the limits and handling of private matters is determined in specific social relations. The crucial point is thus to determine which information and activities are or are not the legitimate concern of others. Privacy and property rights should be seen as balanced by duties, that is as inherently relational interests extending into the public sphere, rather than to see these rights as the control of an object—for instance the participant’s biobank material." @default.
• W1996583433 created "2016-06-24" @default.
• W1996583433 creator A5075510533 @default.
• W1996583433 date "2010-08-27" @default.
• W1996583433 modified "2023-10-12" @default.
• W1996583433 title "Privacy and Property in the Biobank Context" @default.
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• W1996583433 doi "https://doi.org/10.1007/s10730-010-9138-1" @default.
• W1996583433 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/2941052" @default.
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