Matches in SemOpenAlex for { <https://semopenalex.org/work/W2000776854> ?p ?o ?g. }
- W2000776854 endingPage "153" @default.
- W2000776854 startingPage "148" @default.
- W2000776854 abstract "Predictive testing (PT) for Huntington disease (HD) requires several in-person appointments. This requirement may be a barrier to testing so that at risk individuals do not realize the potential benefits of PT. To understand the obstacles to PT in terms of the accessibility of services, as well as exploring mechanisms by which this issue may be addressed, we conducted an interview study of individuals at risk for HD throughout British Columbia, Canada. Results reveal that the accessibility of PT can be a barrier for two major reasons: distance and the inflexibility of the testing process. Distance is a structural barrier, and relates to the time and travel required to access PT, the financial and other opportunity costs associated with taking time away from work and family to attend appointments and the stress of navigating urban centers. The inflexibility of the testing process barrier relates to the emotional and psychological accessibility of PT. The results of the interview study reveal that there are access barriers to PT that deter individuals from receiving the support, information and counseling they require. What makes accessibility of PT services important is not just that it may result in differences in quality of life and care, but because these differences may be addressed with creative and adaptable solutions in the delivery of genetic services. The study findings underscore the need for us to rethink and personalize the way we deliver such services to improve access issues to prevent inequities in the health care system." @default.
- W2000776854 created "2016-06-24" @default.
- W2000776854 creator A5047722409 @default.
- W2000776854 creator A5078936666 @default.
- W2000776854 creator A5086929382 @default.
- W2000776854 date "2012-07-11" @default.
- W2000776854 modified "2023-10-15" @default.
- W2000776854 title "When access is an issue: exploring barriers to predictive testing for Huntington disease in British Columbia, Canada" @default.
- W2000776854 cites W1938315359 @default.
- W2000776854 cites W1965449958 @default.
- W2000776854 cites W1965503064 @default.
- W2000776854 cites W1982698424 @default.
- W2000776854 cites W1994458586 @default.
- W2000776854 cites W2001397693 @default.
- W2000776854 cites W2027487020 @default.
- W2000776854 cites W2035591500 @default.
- W2000776854 cites W2058025497 @default.
- W2000776854 cites W2068416476 @default.
- W2000776854 cites W2069745695 @default.
- W2000776854 cites W2077220866 @default.
- W2000776854 cites W2078060835 @default.
- W2000776854 cites W2091813902 @default.
- W2000776854 cites W2110290882 @default.
- W2000776854 cites W2116021327 @default.
- W2000776854 cites W2117306860 @default.
- W2000776854 cites W2117911252 @default.
- W2000776854 cites W2121642311 @default.
- W2000776854 cites W2129436384 @default.
- W2000776854 cites W2131980748 @default.
- W2000776854 cites W2161685087 @default.
- W2000776854 cites W2169735361 @default.
- W2000776854 cites W2171161819 @default.
- W2000776854 cites W2317137640 @default.
- W2000776854 cites W2319077694 @default.
- W2000776854 cites W2906151105 @default.
- W2000776854 cites W4232065101 @default.
- W2000776854 cites W4252981419 @default.
- W2000776854 doi "https://doi.org/10.1038/ejhg.2012.147" @default.
- W2000776854 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/3548262" @default.
- W2000776854 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/22781094" @default.
- W2000776854 hasPublicationYear "2012" @default.
- W2000776854 type Work @default.
- W2000776854 sameAs 2000776854 @default.
- W2000776854 citedByCount "21" @default.
- W2000776854 countsByYear W20007768542013 @default.
- W2000776854 countsByYear W20007768542014 @default.
- W2000776854 countsByYear W20007768542015 @default.
- W2000776854 countsByYear W20007768542016 @default.
- W2000776854 countsByYear W20007768542017 @default.
- W2000776854 countsByYear W20007768542018 @default.
- W2000776854 countsByYear W20007768542020 @default.
- W2000776854 countsByYear W20007768542021 @default.
- W2000776854 countsByYear W20007768542022 @default.
- W2000776854 countsByYear W20007768542023 @default.
- W2000776854 crossrefType "journal-article" @default.
- W2000776854 hasAuthorship W2000776854A5047722409 @default.
- W2000776854 hasAuthorship W2000776854A5078936666 @default.
- W2000776854 hasAuthorship W2000776854A5086929382 @default.
- W2000776854 hasBestOaLocation W20007768541 @default.
- W2000776854 hasConcept C111472728 @default.
- W2000776854 hasConcept C111919701 @default.
- W2000776854 hasConcept C126322002 @default.
- W2000776854 hasConcept C127413603 @default.
- W2000776854 hasConcept C138885662 @default.
- W2000776854 hasConcept C142724271 @default.
- W2000776854 hasConcept C144133560 @default.
- W2000776854 hasConcept C15744967 @default.
- W2000776854 hasConcept C18762648 @default.
- W2000776854 hasConcept C2779134260 @default.
- W2000776854 hasConcept C2779530757 @default.
- W2000776854 hasConcept C2780673598 @default.
- W2000776854 hasConcept C41008148 @default.
- W2000776854 hasConcept C54355233 @default.
- W2000776854 hasConcept C71924100 @default.
- W2000776854 hasConcept C74909509 @default.
- W2000776854 hasConcept C78519656 @default.
- W2000776854 hasConcept C80227256 @default.
- W2000776854 hasConcept C86803240 @default.
- W2000776854 hasConcept C98045186 @default.
- W2000776854 hasConceptScore W2000776854C111472728 @default.
- W2000776854 hasConceptScore W2000776854C111919701 @default.
- W2000776854 hasConceptScore W2000776854C126322002 @default.
- W2000776854 hasConceptScore W2000776854C127413603 @default.
- W2000776854 hasConceptScore W2000776854C138885662 @default.
- W2000776854 hasConceptScore W2000776854C142724271 @default.
- W2000776854 hasConceptScore W2000776854C144133560 @default.
- W2000776854 hasConceptScore W2000776854C15744967 @default.
- W2000776854 hasConceptScore W2000776854C18762648 @default.
- W2000776854 hasConceptScore W2000776854C2779134260 @default.
- W2000776854 hasConceptScore W2000776854C2779530757 @default.
- W2000776854 hasConceptScore W2000776854C2780673598 @default.
- W2000776854 hasConceptScore W2000776854C41008148 @default.
- W2000776854 hasConceptScore W2000776854C54355233 @default.
- W2000776854 hasConceptScore W2000776854C71924100 @default.
- W2000776854 hasConceptScore W2000776854C74909509 @default.
- W2000776854 hasConceptScore W2000776854C78519656 @default.
- W2000776854 hasConceptScore W2000776854C80227256 @default.
- W2000776854 hasConceptScore W2000776854C86803240 @default.