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Matches in SemOpenAlex for { <https://semopenalex.org/work/W2006155552> ?p ?o ?g. }

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• W2006155552 abstract "Summary: Purpose: To study the effects of epilepsy from the patients’perspective and assist determination of content validity of health-related quality-of-life (HRQOL) measures. Methods: We asked 81 consecutive patients with moderately severe epilepsy to list in order of importance their concerns of living with recurrent seizures. To minimize investigator bias, patients completed the procedure in a private setting without staff involvement. Results: Twenty-four distinct domains were generated by the patients. Concerns about driving (64%), independence (54%), employment (51%), social embarrassment (36%), medication dependence (33%), mood/stress (32%), and safety (31%) each were listed by >30% of patients. Driving was listed as the most important concern by 28% of patients, followed by employment (21%), independence (9%), safety (6%), antiepileptic-drug side effects (5%), seizure unpredictability (5%), and seizure aversion (5%). Conclusions: The effect of epilepsy on HRQOL is not vague or obscure from the patients’perspective but is defined by a limited number of domains. Independence is an important concern that may not be evaluated adequately by currently available HRQOL instruments." @default.
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• W2006155552 date "1997-02-01" @default.
• W2006155552 modified "2023-10-06" @default.
• W2006155552 title "Patient-Validated Content of Epilepsy-Specific Quality-of-Life Measurement" @default.
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• W2006155552 doi "https://doi.org/10.1111/j.1528-1157.1997.tb01102.x" @default.
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