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• W2006562019 abstract "A new questionnaire survey of pediatric surgeons and nurses, using the linear analogue scale, was used to determine subjective assessments of patients' quality of life (QOL) with regard to neonatal surgical diseases and conditions, including those involving anal and urinary functions. The results were analyzed according to the medical providers' years of professional experience. For six neonatal surgical diseases, QOL was assessed more favorably by less experienced surgeons and nurses. The result was similar for adulthood diseases. The development of medical technology can be attributed to this trend; however, QOL for patients with diaphragmatic hernia was assessed less favorably by less experienced surgeons (as 66.1%) than by more experienced surgeons (as 81.6%). Current technology has enabled the survival of neonatal surgical patients who are born prematurely and/or who have serious diseases or anomalies. Consequently this leads to poorer assessment of the surviving patients' QOL. QOL for patients with imperforate anus and spina bifida remained less favorably assessed. That of patients with conditions related to anal and urinary dysfunctions also scaled in the same manner. Anal dysfunction was less favorably assessed by less experienced surgeons (as 40.0%) than by more experienced surgeons (as 49.4%). In part, this discrepancy could be attributed to (1) better adjustment by the patients to their condition over time, and (2) greater focus on QOL issues in recent years. With regard to anal function, low QOL assessment correlated strongly with imperforate anus, Hirshsprung's disease, and spina bifida (P < .01). With regard to urinary function, the QOL scores, which were the lowest in the survey (31.9% by surgeons, 36.1% by nurses), correlated strongly with spina bifida. Requirements and standards concerning QOL in the above-discussed conditions should be better recognized and improved. The changing methodology of patient management should be accompanied by an increased awareness among medical providers toward patient QOL. In other words, patient-focused care is the key to improving QOL in pediatric surgery as well as other health services. This approach was useful as a new method for measuring QOL." @default.
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• W2006562019 modified "2023-09-25" @default.
• W2006562019 title "New approach to assess quality of life in neonatal surgical cases: Medical providers' subjective assessment of disease- and condition-related factors, using the linear analogue scale" @default.
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• W2006562019 doi "https://doi.org/10.1016/0022-3468(94)90735-8" @default.
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