FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2007251145> ?p ?o ?g. }

• W2007251145 endingPage "880" @default.
• W2007251145 startingPage "878" @default.
• W2007251145 abstract "The American Academy of Pediatrics has recommended developmental screening and surveillance for all children. Surveillance is defined as the process of recognizing children at risk of developmental delays, and screening as the use of standardized tools to identify and refine that risk.1 Researchers from the Victorian Infant Collaborative Study Group2 report that parent-completed questionnaires are able to differentiate health status between children born extremely preterm/extremely low birthweight (EP/ELBW) and term-born controls, when administered at the age of 8 years. The parent-completed questionnaires under consideration are the Child Health Questionnaire (CHQ), a measure of health status, and the Health Utilities Index Mark 2 (HUI2), a preference-based, multi-attribute, and health-related quality of life measure. Neither of these measures was designed for use as a screening tool. However, both are able to be completed by parents or carers, and the researchers argue both may give information more aligned with the World Health Organization International Classification of Functioning, Disability and Health in comparison with impairment-based clinical assessment. The researchers report sound methodology for the evaluation of these two instruments. Use of downloadable tools such as the STARD statement3 for reporting studies of diagnostic accuracy can assist the reader (and reviewer) in critically analysing this type of study for methodological strengths and weaknesses. In this study, researchers report sensitivities of 0.86 for the HUI2 overall score and 0.96 for the HUI2 disability-specific score in predicting moderate to severe disability status in EP/ELBW children. Specificities of 0.60 and 0.64 for the HUI2 overall score and disability-specific score respectively are also reported.2 These sensitivities are above the recommended cut-off for developmental screening tests but specificities are at the lower range of acceptability.1 The CHQ did not have sufficient sensitivity or specificity to be used for the purposes of screening.2 The HUI2 and HUI3 are generic questionnaires with scoring functions based on preference measurements from random samples of the general population. They represent mean community values and can be used to calculate quality adjusted life years (QALYs) in cost-effectiveness studies.4 They are valid for children aged 5 years or older. The HUI2 consists of six attributes while the HUI3 has eight attributes. It is important to note that although the HUI2 and HUI3 overlap, some of the similarly named attributes have different underlying constructs. In this study, researchers asked parents or carers to complete the HUI2 for their child. The HUI developers recommend proxy-assessed, self- or interviewer-administered versions for children aged 5–8 years, and the self-assessed, interviewer-administered version for 8- to 12-year-olds. The self-assessed, self- or interviewer-administered version is recommended for children 13 years or older.4 However, proxy reporting of health-related quality of life is challenging, particularly for the more subjective domains of social and emotional well-being. Children with chronic disability who self-report on the HUI2 tend to have higher scores than doctors and parents although there is better agreement between child-parent than child-doctor, particularly for subjective areas. Other factors, such as whether the mother or father completed the proxy report, can impact on the scores. These factors should be taken into account by the clinician when reviewing an individual’s responses on the HUI.5 Auditing, education and clinical intervention have been stated as the three goals of current neonatal follow-up programs.6 The use of the HUI2 as a screening tool, as described in this study, is most likely to sit within the audit domain but its use will be limited by the low positive predictive value and the older group of children on whom it has been tested. In addition, there is an expectation that all children born EP/ELBW, who are known to be at risk of developmental disability, are enrolled in some form of surveillance program, whether the neonatal unit outpatient clinic, community paediatrician, or community health centre program. Through these different avenues, children who have moderate or severe disability as defined by the researchers2 should have been identified well before the age of 8 years. Early intervention may then be commenced at an appropriate developmental stage, taking into consideration the need for more evidence on the efficacy of such programs.7 Despite improvements in rates of survival for these smallest and most preterm infants, almost half of this population will have ongoing difficulties with their physical, cognitive, and behavioural development.8 Improvements in cognitive outcome for the latest cohorts of children born preterm have been reported, although assessment of intellectual capacity alone may miss problems in executive functions and behaviour.9 At the age of 8 years, screening should focus on these latter issues, as unlike significant physical or cognitive impairments they are less likely to have been identified at an earlier stage. Researchers from the Victorian Infant Collaborative Study Group10 have previously stated the need for ongoing neuropsychological review throughout middle childhood in this population to identify these problems and plan appropriate intervention. There is little doubt that children born EP/ELBW require surveillance and screening throughout childhood. The use of a tool such as the HUI2 for screening is attractive, in order to lessen the burden on families who may not need to attend multidisciplinary clinics. Further investigation is needed into its use at a younger age and ability to detect more subtle neuropsychological problems, whether it be administered by phone or mailed questionnaire and self-report." @default.
• W2007251145 created "2016-06-24" @default.
• W2007251145 creator A5080124244 @default.
• W2007251145 date "2011-07-11" @default.
• W2007251145 modified "2023-09-23" @default.
• W2007251145 title "Screening for children born extremely preterm and at extremely low birthweight - a role for health-related quality of life measures?" @default.
• W2007251145 cites W1582840748 @default.
• W2007251145 cites W1786622550 @default.
• W2007251145 cites W1944522514 @default.
• W2007251145 cites W1975207777 @default.
• W2007251145 cites W2115375295 @default.
• W2007251145 cites W2126496701 @default.
• W2007251145 cites W2157222645 @default.
• W2007251145 doi "https://doi.org/10.1111/j.1469-8749.2011.04046.x" @default.
• W2007251145 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/21745200" @default.
• W2007251145 hasPublicationYear "2011" @default.
• W2007251145 type Work @default.
• W2007251145 sameAs 2007251145 @default.
• W2007251145 citedByCount "3" @default.
• W2007251145 countsByYear W20072511452012 @default.
• W2007251145 countsByYear W20072511452016 @default.
• W2007251145 countsByYear W20072511452020 @default.
• W2007251145 crossrefType "journal-article" @default.
• W2007251145 hasAuthorship W2007251145A5080124244 @default.
• W2007251145 hasBestOaLocation W20072511451 @default.
• W2007251145 hasConcept C142724271 @default.
• W2007251145 hasConcept C15744967 @default.
• W2007251145 hasConcept C159110408 @default.
• W2007251145 hasConcept C17744445 @default.
• W2007251145 hasConcept C187212893 @default.
• W2007251145 hasConcept C199539241 @default.
• W2007251145 hasConcept C2776176941 @default.
• W2007251145 hasConcept C2779083892 @default.
• W2007251145 hasConcept C2779134260 @default.
• W2007251145 hasConcept C2779234561 @default.
• W2007251145 hasConcept C2779473830 @default.
• W2007251145 hasConcept C2779951463 @default.
• W2007251145 hasConcept C3019006561 @default.
• W2007251145 hasConcept C512399662 @default.
• W2007251145 hasConcept C54355233 @default.
• W2007251145 hasConcept C63882131 @default.
• W2007251145 hasConcept C71924100 @default.
• W2007251145 hasConcept C74909509 @default.
• W2007251145 hasConcept C77805123 @default.
• W2007251145 hasConcept C86803240 @default.
• W2007251145 hasConceptScore W2007251145C142724271 @default.
• W2007251145 hasConceptScore W2007251145C15744967 @default.
• W2007251145 hasConceptScore W2007251145C159110408 @default.
• W2007251145 hasConceptScore W2007251145C17744445 @default.
• W2007251145 hasConceptScore W2007251145C187212893 @default.
• W2007251145 hasConceptScore W2007251145C199539241 @default.
• W2007251145 hasConceptScore W2007251145C2776176941 @default.
• W2007251145 hasConceptScore W2007251145C2779083892 @default.
• W2007251145 hasConceptScore W2007251145C2779134260 @default.
• W2007251145 hasConceptScore W2007251145C2779234561 @default.
• W2007251145 hasConceptScore W2007251145C2779473830 @default.
• W2007251145 hasConceptScore W2007251145C2779951463 @default.
• W2007251145 hasConceptScore W2007251145C3019006561 @default.
• W2007251145 hasConceptScore W2007251145C512399662 @default.
• W2007251145 hasConceptScore W2007251145C54355233 @default.
• W2007251145 hasConceptScore W2007251145C63882131 @default.
• W2007251145 hasConceptScore W2007251145C71924100 @default.
• W2007251145 hasConceptScore W2007251145C74909509 @default.
• W2007251145 hasConceptScore W2007251145C77805123 @default.
• W2007251145 hasConceptScore W2007251145C86803240 @default.
• W2007251145 hasIssue "10" @default.
• W2007251145 hasLocation W20072511451 @default.
• W2007251145 hasLocation W20072511452 @default.
• W2007251145 hasOpenAccess W2007251145 @default.
• W2007251145 hasPrimaryLocation W20072511451 @default.
• W2007251145 hasRelatedWork W1965991087 @default.
• W2007251145 hasRelatedWork W2400794002 @default.
• W2007251145 hasRelatedWork W2403183922 @default.
• W2007251145 hasRelatedWork W2605513427 @default.
• W2007251145 hasRelatedWork W2802636193 @default.
• W2007251145 hasRelatedWork W2989251437 @default.
• W2007251145 hasRelatedWork W3046398916 @default.
• W2007251145 hasRelatedWork W4206330015 @default.
• W2007251145 hasRelatedWork W4309150743 @default.
• W2007251145 hasRelatedWork W4311351212 @default.
• W2007251145 hasVolume "53" @default.
• W2007251145 isParatext "false" @default.
• W2007251145 isRetracted "false" @default.
• W2007251145 magId "2007251145" @default.
• W2007251145 workType "article" @default.