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- W2011561119 abstract "There is substantial evidence that the health care system is failing children and families when they are confronted by a life-threatening illness. To pursue effective treatment for the symptoms of advancing disease, the child must often undergo painful treatments and cope with the day-to-day burdens of the condition. Families of these children often feel lonely and abandoned as they struggle to cope with the illness, grief, and changes in their family dynamics. The ill child can feel easily overwhelmed and frightened when faced with circumstances that prevent him or her from feeling in control of his or her own life. As death draws near, social supports for the child and his or her family are often woefully inadequate. Although health care professionals may be abundantly present in the child's life, these same professionals are themselves in need of support as they cope with their own responses to the death of a child." @default.
- W2011561119 created "2016-06-24" @default.
- W2011561119 creator A5019108878 @default.
- W2011561119 date "2002-12-01" @default.
- W2011561119 modified "2023-09-26" @default.
- W2011561119 title "End-of-life care: A priority issue for pediatric nurses" @default.
- W2011561119 cites W2113460658 @default.
- W2011561119 doi "https://doi.org/10.1053/jpdn.2002.130398" @default.
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