FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2016981921> ?p ?o ?g. }

• W2016981921 endingPage "1065" @default.
• W2016981921 startingPage "1055" @default.
• W2016981921 abstract "Abstract Aims To understand the perceptions, needs and experiences of patients with Idiopathic Pulmonary Fibrosis. Background Idiopathic pulmonary fibrosis is a progressive interstitial lung disease, with a mean life expectancy similar to some forms of cancer of 2–4 years from diagnosis. Unlike the cancer literature, which is rich with studies exploring the needs of their disease group, few publications exist on patient needs with this severe fibrotic lung disease. Design A Qualitative study which took place between 2007–2012. Methods Seventeen patients with a multidisciplinary team confirmed diagnosis of Idiopathic Pulmonary Fibrosis, with moderate to advanced disease severity and six of their informal carers were interviewed. An interview topic guide was developed by the researchers and service user group. The interviews were audio‐recorded, semi‐structured and took place at a regional respiratory and lung transplant centre in North West England. Interviews were transcribed verbatim and data analysed using Framework Analysis. Findings Three main themes were identified: ‘Struggling to get a diagnosis’; ‘Loss of the life I previously had’; and ‘Living with Idiopathic Pulmonary Fibrosis’. Patients reported struggling to get a diagnosis and coping with a life‐limiting, rapidly progressive illness with no good treatment and few support structures. Conclusions There is an urgent need for a better understanding of the difficulties faced by people with Idiopathic Pulmonary Fibrosis and their carers. This can be used to develop better supportive care in the United Kingdom and ultimately improve the quality of life of these patients." @default.
• W2016981921 created "2016-06-24" @default.
• W2016981921 creator A5001861480 @default.
• W2016981921 creator A5042289288 @default.
• W2016981921 creator A5048111813 @default.
• W2016981921 creator A5064661587 @default.
• W2016981921 creator A5067225698 @default.
• W2016981921 creator A5083114880 @default.
• W2016981921 date "2014-12-23" @default.
• W2016981921 modified "2023-10-12" @default.
• W2016981921 title "Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis" @default.
• W2016981921 cites W1971928980 @default.
• W2016981921 cites W1976830524 @default.
• W2016981921 cites W1999185257 @default.
• W2016981921 cites W2008849432 @default.
• W2016981921 cites W2012569389 @default.
• W2016981921 cites W2036371346 @default.
• W2016981921 cites W2092832359 @default.
• W2016981921 cites W2098794749 @default.
• W2016981921 cites W2103258766 @default.
• W2016981921 cites W2114846819 @default.
• W2016981921 cites W2114970103 @default.
• W2016981921 cites W2121962771 @default.
• W2016981921 cites W2122808445 @default.
• W2016981921 cites W2123726025 @default.
• W2016981921 cites W2125262290 @default.
• W2016981921 cites W2128466370 @default.
• W2016981921 cites W2141997945 @default.
• W2016981921 cites W2153465535 @default.
• W2016981921 cites W2160324801 @default.
• W2016981921 cites W2163330185 @default.
• W2016981921 cites W2164905164 @default.
• W2016981921 cites W2167383172 @default.
• W2016981921 cites W4244454468 @default.
• W2016981921 cites W4248854933 @default.
• W2016981921 doi "https://doi.org/10.1111/jan.12587" @default.
• W2016981921 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4674980" @default.
• W2016981921 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/25533573" @default.
• W2016981921 hasPublicationYear "2014" @default.
• W2016981921 type Work @default.
• W2016981921 sameAs 2016981921 @default.
• W2016981921 citedByCount "66" @default.
• W2016981921 countsByYear W20169819212015 @default.
• W2016981921 countsByYear W20169819212016 @default.
• W2016981921 countsByYear W20169819212017 @default.
• W2016981921 countsByYear W20169819212018 @default.
• W2016981921 countsByYear W20169819212019 @default.
• W2016981921 countsByYear W20169819212020 @default.
• W2016981921 countsByYear W20169819212021 @default.
• W2016981921 countsByYear W20169819212022 @default.
• W2016981921 countsByYear W20169819212023 @default.
• W2016981921 crossrefType "journal-article" @default.
• W2016981921 hasAuthorship W2016981921A5001861480 @default.
• W2016981921 hasAuthorship W2016981921A5042289288 @default.
• W2016981921 hasAuthorship W2016981921A5048111813 @default.
• W2016981921 hasAuthorship W2016981921A5064661587 @default.
• W2016981921 hasAuthorship W2016981921A5067225698 @default.
• W2016981921 hasAuthorship W2016981921A5083114880 @default.
• W2016981921 hasBestOaLocation W20169819211 @default.
• W2016981921 hasConcept C126322002 @default.
• W2016981921 hasConcept C133925201 @default.
• W2016981921 hasConcept C144024400 @default.
• W2016981921 hasConcept C144133560 @default.
• W2016981921 hasConcept C159110408 @default.
• W2016981921 hasConcept C162853370 @default.
• W2016981921 hasConcept C177713679 @default.
• W2016981921 hasConcept C190248442 @default.
• W2016981921 hasConcept C2777543607 @default.
• W2016981921 hasConcept C2777714996 @default.
• W2016981921 hasConcept C2778341716 @default.
• W2016981921 hasConcept C2779134260 @default.
• W2016981921 hasConcept C2779951463 @default.
• W2016981921 hasConcept C2781244666 @default.
• W2016981921 hasConcept C2908647359 @default.
• W2016981921 hasConcept C2994186709 @default.
• W2016981921 hasConcept C3020501284 @default.
• W2016981921 hasConcept C36289849 @default.
• W2016981921 hasConcept C512399662 @default.
• W2016981921 hasConcept C56995899 @default.
• W2016981921 hasConcept C70410870 @default.
• W2016981921 hasConcept C71924100 @default.
• W2016981921 hasConcept C73282008 @default.
• W2016981921 hasConcept C99454951 @default.
• W2016981921 hasConceptScore W2016981921C126322002 @default.
• W2016981921 hasConceptScore W2016981921C133925201 @default.
• W2016981921 hasConceptScore W2016981921C144024400 @default.
• W2016981921 hasConceptScore W2016981921C144133560 @default.
• W2016981921 hasConceptScore W2016981921C159110408 @default.
• W2016981921 hasConceptScore W2016981921C162853370 @default.
• W2016981921 hasConceptScore W2016981921C177713679 @default.
• W2016981921 hasConceptScore W2016981921C190248442 @default.
• W2016981921 hasConceptScore W2016981921C2777543607 @default.
• W2016981921 hasConceptScore W2016981921C2777714996 @default.
• W2016981921 hasConceptScore W2016981921C2778341716 @default.
• W2016981921 hasConceptScore W2016981921C2779134260 @default.
• W2016981921 hasConceptScore W2016981921C2779951463 @default.
• W2016981921 hasConceptScore W2016981921C2781244666 @default.
• W2016981921 hasConceptScore W2016981921C2908647359 @default.

• next