Matches in SemOpenAlex for { <https://semopenalex.org/work/W2017682491> ?p ?o ?g. }
Showing items 1 to 49 of
49
with 100 items per page.
- W2017682491 abstract "Health care professionals cannot be taught or know about 6 000 to 8 000 rare diseases. Though research, care and treatments progress every year, rare diseases are chronic, severe, complex and disabling conditions affecting patients and their families 24 hours a day. The national plans in France organise a 2 hours course for medical students to raise awareness and provide tools. 2 mothers of children living with rare diseases participated in a 20 hour pilot course in a medical school in Paris. During this course, they present the outcomes of the EurordisCare studies (12 000 questionnaires to patients and families throughout Europe), discuss their daily experiences with students and present the complexity of a very necessary comprehensive approach for rare diseases: medical, educative, social, from childhood to adulthood, extended to parents and siblings." @default.
- W2017682491 created "2016-06-24" @default.
- W2017682491 creator A5052453939 @default.
- W2017682491 date "2010-10-01" @default.
- W2017682491 modified "2023-09-26" @default.
- W2017682491 title "Medical education: the role of patients" @default.
- W2017682491 doi "https://doi.org/10.1186/1750-1172-5-s1-o26" @default.
- W2017682491 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/2958384" @default.
- W2017682491 hasPublicationYear "2010" @default.
- W2017682491 type Work @default.
- W2017682491 sameAs 2017682491 @default.
- W2017682491 citedByCount "2" @default.
- W2017682491 countsByYear W20176824912015 @default.
- W2017682491 crossrefType "journal-article" @default.
- W2017682491 hasAuthorship W2017682491A5052453939 @default.
- W2017682491 hasBestOaLocation W20176824911 @default.
- W2017682491 hasConcept C104317684 @default.
- W2017682491 hasConcept C144133560 @default.
- W2017682491 hasConcept C47042493 @default.
- W2017682491 hasConcept C54355233 @default.
- W2017682491 hasConcept C71924100 @default.
- W2017682491 hasConcept C86803240 @default.
- W2017682491 hasConceptScore W2017682491C104317684 @default.
- W2017682491 hasConceptScore W2017682491C144133560 @default.
- W2017682491 hasConceptScore W2017682491C47042493 @default.
- W2017682491 hasConceptScore W2017682491C54355233 @default.
- W2017682491 hasConceptScore W2017682491C71924100 @default.
- W2017682491 hasConceptScore W2017682491C86803240 @default.
- W2017682491 hasIssue "S1" @default.
- W2017682491 hasLocation W20176824911 @default.
- W2017682491 hasLocation W20176824912 @default.
- W2017682491 hasLocation W20176824913 @default.
- W2017682491 hasOpenAccess W2017682491 @default.
- W2017682491 hasPrimaryLocation W20176824911 @default.
- W2017682491 hasRelatedWork W1506200166 @default.
- W2017682491 hasRelatedWork W1995515455 @default.
- W2017682491 hasRelatedWork W2039318446 @default.
- W2017682491 hasRelatedWork W2048182022 @default.
- W2017682491 hasRelatedWork W2080531066 @default.
- W2017682491 hasRelatedWork W2604872355 @default.
- W2017682491 hasRelatedWork W2748952813 @default.
- W2017682491 hasRelatedWork W2899084033 @default.
- W2017682491 hasRelatedWork W3032375762 @default.
- W2017682491 hasRelatedWork W3108674512 @default.
- W2017682491 hasVolume "5" @default.
- W2017682491 isParatext "false" @default.
- W2017682491 isRetracted "false" @default.
- W2017682491 magId "2017682491" @default.
- W2017682491 workType "article" @default.