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• W2017907584 abstract "Objectives: To evaluate current (inter)national registers and observational cohorts in Europe, and to compare inclusion criteria, aims, collected data, and participation in the European League Against Rheumatism (EULAR) repository.Method: We performed a systematic search strategy in six literature databases for rheumatoid arthritis (RA). Publications reporting European (inter)national prospective registers/cohorts including > 200 RA patients with at least half a year of follow-up were selected.Results: In total, 417 articles and abstracts were included from four international databases and 39 national databases/cohorts. International databases were of similar design, frequency of data collection and selection criteria and are mostly initiated to monitor and compare clinical patient care among countries. National databases/cohorts vary in aims and inclusion criteria. Half of the national registers are connected to the EULAR repository of databases.Conclusions: Our findings indicate that, among researchers, there is little awareness of guidelines to set up registers or cohorts and of the existence of the database collaboration network of EULAR." @default.
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• W2017907584 date "2014-06-05" @default.
• W2017907584 modified "2023-09-27" @default.
• W2017907584 title "Comparison of characteristics of international and national databases for rheumatoid arthritis: a systematic literature review" @default.
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• W2017907584 doi "https://doi.org/10.3109/03009742.2014.887767" @default.
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