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• W2019490691 abstract "The starting point for the network of Genetics and Democracy at Lund University was a discussion among colleagues on how new research results would affect the possibilities of predicting not only genetic variants in relation to disease but also future behaviour. This discussion was launched when the Nuffield Council on Bioethics in 2002 published its report “Genetics and Human Behaviour—the ethical context”; the subject of the report being human behaviour in the “normal range”, as opposed to traits that are defined as illnesses or diseases (Nuffield Council on Bioethics 2002). Our initial discussions within the group came to be focused upon behaviour and skills, but we soon widened our scope and tried to look into other aspects of genetic issues in relation to legislation, public health, public understanding of science, as well as public participation in science. It became apparent to us that many of these issues were connected to fundamental values in Western societies and subsequently to the notion of democracy and democratic rule and governance. In 2007, these discussions led to the formation of the network “Genetics and Democracy at Lund University” with members from the fields of clinical genetics, political science, history, ethnology, sociology, and population genetics applying for grants for a series of lectures on this topic. Since 2007, 14 seminars have been held with distinguished international speakers (Box 1), some of whom have contributed with their presentations as papers to this special issue of the Journal of Community Genetics. We also held an internal half-day seminar presenting ongoing research in the broad field of Genetics and Democracy within Lund University.Box 1. Lecturers and titles in the seminar series Genetics and Democracy at Lund University 2007–2012Seminars 11 and 12 were held in collaboration with the Learning and Media Technology Studio, University of Gothenburg (www.letstudio.gu.se)aPresented as papers in this issue of Journal of Community GeneticsIt was our goal to explore how legislators and social welfare and health care systems are coping with advances in genetic science and its use for the good of citizens. Democratic considerations pertained not only to political decision making and accountability but also to the possibilities of the inclusion of concerned parties for a plurality of views to be considered, as well as to the outcomes of those processes. Our series of lectures provides some snapshots from different areas and gives an overview of the broad field of scientific advances in genetics, if by no means a full one.We, the guest editors of this issue of the Journal of Community Genetics, are thankful to the Editor-in-chief and the Publisher for allowing us to introduce some of the presentations from this seminar series." @default.
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• W2019490691 title "Editorial: Genetics and Democracy" @default.
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