Matches in SemOpenAlex for { <https://semopenalex.org/work/W2019924287> ?p ?o ?g. }
Showing items 1 to 94 of
94
with 100 items per page.
- W2019924287 endingPage "63" @default.
- W2019924287 startingPage "55" @default.
- W2019924287 abstract "In 2003, Havasupai tribe members in Arizona discovered that their DNA samples, collected for genetic studies on Type II diabetes, had been used for studies on schizophrenia, migration, and inbreeding without their approval. The resulting lawsuit brought by the Havasupai reached a settlement in April 2010 in which tribe members received monetary compensation and the return of DNA samples. In this study, we examine the perceptions of Institutional Review Board (IRB) chairpersons and human genetic researchers about the case and its impact on the practice of research.Twenty-minute semi-structured interviews were conducted with 26 Institutional Review Board (IRB) chairs and researchers at six top NIH-funded institutions. Participants were questioned about their knowledge and perceived impact of the Havasupai case and their perceptions of informed consent in genetic research studies.We found that most study participants did not perceive that the Havasupai case had a large impact. However, we identified key concerns and opinions of the case, in particular, increased awareness of culturally sensitive issues with informed consent and secondary uses of samples.The results provide a deeper understanding of how informed consent issues are understood by IRB members and human genetic researchers and the implications for research ethics education." @default.
- W2019924287 created "2016-06-24" @default.
- W2019924287 creator A5010886557 @default.
- W2019924287 creator A5090308794 @default.
- W2019924287 date "2013-10-01" @default.
- W2019924287 modified "2023-10-16" @default.
- W2019924287 title "Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit" @default.
- W2019924287 cites W17995711 @default.
- W2019924287 cites W1962742475 @default.
- W2019924287 cites W1968754510 @default.
- W2019924287 cites W1972111775 @default.
- W2019924287 cites W1982725690 @default.
- W2019924287 cites W2015481161 @default.
- W2019924287 cites W2035567831 @default.
- W2019924287 cites W2037283500 @default.
- W2019924287 cites W2049240198 @default.
- W2019924287 cites W2081338312 @default.
- W2019924287 cites W2105723508 @default.
- W2019924287 cites W2116689203 @default.
- W2019924287 cites W2129367312 @default.
- W2019924287 cites W2137154657 @default.
- W2019924287 cites W2151218860 @default.
- W2019924287 cites W4322697719 @default.
- W2019924287 doi "https://doi.org/10.1080/21507716.2013.770104" @default.
- W2019924287 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/3786163" @default.
- W2019924287 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/24089655" @default.
- W2019924287 hasPublicationYear "2013" @default.
- W2019924287 type Work @default.
- W2019924287 sameAs 2019924287 @default.
- W2019924287 citedByCount "26" @default.
- W2019924287 countsByYear W20199242872014 @default.
- W2019924287 countsByYear W20199242872015 @default.
- W2019924287 countsByYear W20199242872016 @default.
- W2019924287 countsByYear W20199242872017 @default.
- W2019924287 countsByYear W20199242872018 @default.
- W2019924287 countsByYear W20199242872019 @default.
- W2019924287 countsByYear W20199242872021 @default.
- W2019924287 countsByYear W20199242872022 @default.
- W2019924287 crossrefType "journal-article" @default.
- W2019924287 hasAuthorship W2019924287A5010886557 @default.
- W2019924287 hasAuthorship W2019924287A5090308794 @default.
- W2019924287 hasBestOaLocation W20199242872 @default.
- W2019924287 hasConcept C118552586 @default.
- W2019924287 hasConcept C142724271 @default.
- W2019924287 hasConcept C153997805 @default.
- W2019924287 hasConcept C15744967 @default.
- W2019924287 hasConcept C17744445 @default.
- W2019924287 hasConcept C199539241 @default.
- W2019924287 hasConcept C204787440 @default.
- W2019924287 hasConcept C2777106319 @default.
- W2019924287 hasConcept C2777134139 @default.
- W2019924287 hasConcept C2779121571 @default.
- W2019924287 hasConcept C509550671 @default.
- W2019924287 hasConcept C512399662 @default.
- W2019924287 hasConcept C68122502 @default.
- W2019924287 hasConcept C71924100 @default.
- W2019924287 hasConceptScore W2019924287C118552586 @default.
- W2019924287 hasConceptScore W2019924287C142724271 @default.
- W2019924287 hasConceptScore W2019924287C153997805 @default.
- W2019924287 hasConceptScore W2019924287C15744967 @default.
- W2019924287 hasConceptScore W2019924287C17744445 @default.
- W2019924287 hasConceptScore W2019924287C199539241 @default.
- W2019924287 hasConceptScore W2019924287C204787440 @default.
- W2019924287 hasConceptScore W2019924287C2777106319 @default.
- W2019924287 hasConceptScore W2019924287C2777134139 @default.
- W2019924287 hasConceptScore W2019924287C2779121571 @default.
- W2019924287 hasConceptScore W2019924287C509550671 @default.
- W2019924287 hasConceptScore W2019924287C512399662 @default.
- W2019924287 hasConceptScore W2019924287C68122502 @default.
- W2019924287 hasConceptScore W2019924287C71924100 @default.
- W2019924287 hasIssue "4" @default.
- W2019924287 hasLocation W20199242871 @default.
- W2019924287 hasLocation W20199242872 @default.
- W2019924287 hasLocation W20199242873 @default.
- W2019924287 hasLocation W20199242874 @default.
- W2019924287 hasOpenAccess W2019924287 @default.
- W2019924287 hasPrimaryLocation W20199242871 @default.
- W2019924287 hasRelatedWork W2019924287 @default.
- W2019924287 hasRelatedWork W2054696136 @default.
- W2019924287 hasRelatedWork W2108624693 @default.
- W2019924287 hasRelatedWork W2128020792 @default.
- W2019924287 hasRelatedWork W2130977361 @default.
- W2019924287 hasRelatedWork W2131993109 @default.
- W2019924287 hasRelatedWork W2313532558 @default.
- W2019924287 hasRelatedWork W2419613178 @default.
- W2019924287 hasRelatedWork W2899084033 @default.
- W2019924287 hasRelatedWork W4230341009 @default.
- W2019924287 hasVolume "4" @default.
- W2019924287 isParatext "false" @default.
- W2019924287 isRetracted "false" @default.
- W2019924287 magId "2019924287" @default.
- W2019924287 workType "article" @default.