Matches in SemOpenAlex for { <https://semopenalex.org/work/W2019969508> ?p ?o ?g. }
Showing items 1 to 89 of
89
with 100 items per page.
- W2019969508 endingPage "465" @default.
- W2019969508 startingPage "460" @default.
- W2019969508 abstract "Information on parents' attitudes towards neonatal screening for cystic fibrosis (CF) and antenatal diagnosis by chorion villus biopsy (CVS) has been derived from a detailed questionnaire administered to parents of CF babies diagnosed early following newborn screening (18 babies), and later on account of clinical criteria (11 babies). Screening was by measurement of immunoreactive trypsin (IRT) on Guthrie card blood spots, which was the basis of the Wales/West Midlands IRT Screening Survey, 1985–1989. Families questioned were from Wales. Most parents supported screening: parents of 15/18 (83%) screened babies and 10/11 (91%) unscreened babies. Following antenatal diagnosis, 15/29 (52%) of families would abort a CF foetus. Neither standard of education nor social class correlated with attitudes to screening or antenatal diagnosis, although these factors were related to the parents' knowledge of CF in general. Several families emphasised the importance of minimal delay between the initial mention of the possibility of CF on IRT testing and confirmation (or otherwise) of the diagnosis. Four mothers acknowledged temporary rejection of their babies during the period of uncertainty or following the procedures of diagnosis, emphasising that neonatal screening for CF can have a psychological impact on the parent-child bonding. Although most families supported neonatal screening for CF, this study underlines some of the difficulties which may be encountered during the procedure of screening for CF by IRT." @default.
- W2019969508 created "2016-06-24" @default.
- W2019969508 creator A5060183458 @default.
- W2019969508 creator A5061037594 @default.
- W2019969508 creator A5064182544 @default.
- W2019969508 creator A5053790342 @default.
- W2019969508 date "2008-06-28" @default.
- W2019969508 modified "2023-09-25" @default.
- W2019969508 title "Attitudes of parents of cystic fibrosis children towards neonatal screening and antenatal diagnosis" @default.
- W2019969508 cites W1917662901 @default.
- W2019969508 cites W1980003465 @default.
- W2019969508 cites W2003559527 @default.
- W2019969508 cites W2020503567 @default.
- W2019969508 cites W2031563328 @default.
- W2019969508 cites W2039258378 @default.
- W2019969508 cites W2087844647 @default.
- W2019969508 cites W2094966201 @default.
- W2019969508 cites W2111312634 @default.
- W2019969508 cites W2112665737 @default.
- W2019969508 cites W2125391335 @default.
- W2019969508 cites W2167621385 @default.
- W2019969508 doi "https://doi.org/10.1111/j.1399-0004.1990.tb03613.x" @default.
- W2019969508 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/2289319" @default.
- W2019969508 hasPublicationYear "2008" @default.
- W2019969508 type Work @default.
- W2019969508 sameAs 2019969508 @default.
- W2019969508 citedByCount "65" @default.
- W2019969508 countsByYear W20199695082012 @default.
- W2019969508 countsByYear W20199695082013 @default.
- W2019969508 countsByYear W20199695082015 @default.
- W2019969508 countsByYear W20199695082017 @default.
- W2019969508 countsByYear W20199695082018 @default.
- W2019969508 countsByYear W20199695082019 @default.
- W2019969508 countsByYear W20199695082020 @default.
- W2019969508 crossrefType "journal-article" @default.
- W2019969508 hasAuthorship W2019969508A5053790342 @default.
- W2019969508 hasAuthorship W2019969508A5060183458 @default.
- W2019969508 hasAuthorship W2019969508A5061037594 @default.
- W2019969508 hasAuthorship W2019969508A5064182544 @default.
- W2019969508 hasConcept C126322002 @default.
- W2019969508 hasConcept C131872663 @default.
- W2019969508 hasConcept C172680121 @default.
- W2019969508 hasConcept C185592680 @default.
- W2019969508 hasConcept C187212893 @default.
- W2019969508 hasConcept C2776169613 @default.
- W2019969508 hasConcept C2776938444 @default.
- W2019969508 hasConcept C2778258057 @default.
- W2019969508 hasConcept C2779234561 @default.
- W2019969508 hasConcept C3017516299 @default.
- W2019969508 hasConcept C43617362 @default.
- W2019969508 hasConcept C54355233 @default.
- W2019969508 hasConcept C71924100 @default.
- W2019969508 hasConcept C86803240 @default.
- W2019969508 hasConceptScore W2019969508C126322002 @default.
- W2019969508 hasConceptScore W2019969508C131872663 @default.
- W2019969508 hasConceptScore W2019969508C172680121 @default.
- W2019969508 hasConceptScore W2019969508C185592680 @default.
- W2019969508 hasConceptScore W2019969508C187212893 @default.
- W2019969508 hasConceptScore W2019969508C2776169613 @default.
- W2019969508 hasConceptScore W2019969508C2776938444 @default.
- W2019969508 hasConceptScore W2019969508C2778258057 @default.
- W2019969508 hasConceptScore W2019969508C2779234561 @default.
- W2019969508 hasConceptScore W2019969508C3017516299 @default.
- W2019969508 hasConceptScore W2019969508C43617362 @default.
- W2019969508 hasConceptScore W2019969508C54355233 @default.
- W2019969508 hasConceptScore W2019969508C71924100 @default.
- W2019969508 hasConceptScore W2019969508C86803240 @default.
- W2019969508 hasIssue "6" @default.
- W2019969508 hasLocation W20199695081 @default.
- W2019969508 hasLocation W20199695082 @default.
- W2019969508 hasOpenAccess W2019969508 @default.
- W2019969508 hasPrimaryLocation W20199695081 @default.
- W2019969508 hasRelatedWork W2001573784 @default.
- W2019969508 hasRelatedWork W2032509695 @default.
- W2019969508 hasRelatedWork W2049460266 @default.
- W2019969508 hasRelatedWork W2087791539 @default.
- W2019969508 hasRelatedWork W2110374842 @default.
- W2019969508 hasRelatedWork W2491979000 @default.
- W2019969508 hasRelatedWork W2770763248 @default.
- W2019969508 hasRelatedWork W3024456095 @default.
- W2019969508 hasRelatedWork W3043669537 @default.
- W2019969508 hasRelatedWork W4255428519 @default.
- W2019969508 hasVolume "38" @default.
- W2019969508 isParatext "false" @default.
- W2019969508 isRetracted "false" @default.
- W2019969508 magId "2019969508" @default.
- W2019969508 workType "article" @default.