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• W2023009343 abstract "No AccessJournal of UrologyKidney/Hydronephrosis1 Oct 2008Parent Perspectives of Health Related Quality of Life in Adolescents With Chronic Kidney Disease Due to Underlying Urological Disorders: An Assessment Using the Child Health Questionnaire-Parent Form 50 Jennifer L. Dodson, Arlene C. Gerson, Chun-Ju Hsiao, Frederick J. Kaskel, Robert A. Weiss, and Susan L. Furth Jennifer L. DodsonJennifer L. Dodson Department of Urology, The Johns Hopkins Medical Institutions, Baltimore, Maryland More articles by this author , Arlene C. GersonArlene C. Gerson Department of Pediatrics, The Johns Hopkins Medical Institutions, Baltimore, Maryland More articles by this author , Chun-Ju HsiaoChun-Ju Hsiao Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland More articles by this author , Frederick J. KaskelFrederick J. Kaskel Pediatric Nephrology, Albert Einstein College of Medicine, Valhalla, New York More articles by this author , Robert A. WeissRobert A. Weiss Bronx and Maria Fareri Children's Hospital, Valhalla, New York More articles by this author , and Susan L. FurthSusan L. Furth Department of Pediatrics, The Johns Hopkins Medical Institutions, Baltimore, Maryland Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins University, Baltimore, Maryland More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2008.03.117AboutFull TextPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract Purpose: Little is known about health related quality of life in adolescents with chronic kidney disease due to urological anomalies. We assessed generic health related quality of life in this population using a validated parent proxy instrument. Materials and Methods: In this multicenter prospective cohort study the Child Health Questionnaire-Parent Form 50, a generic health related quality of life parent proxy instrument, was administered to 92 parents of adolescents 10 to 18 years old with chronic kidney disease. Mean summary measure and scale scores in adolescents with urological anomalies were compared to scores in those with other causes of kidney disease and in a representative American population sample. Results: The cohort included 35 adolescents with an underlying diagnosis of congenital urological anomaly and 57 with another cause of kidney disease. There were no significant differences in mean scale or summary measure scores between the 2 diagnostic groups. When compared to a representative population sample, adolescents with congenital urological anomalies scored significantly worse on the questionnaire physical summary measure (44.5, 95% CI 39.9–49.1 vs 52.0, 95% CI 51.1–52.9, p = 0.002), and on the Child Health Questionnaire scales physical functioning, role physical, general health perceptions, family activities and parental emotional impact. Conclusions: As assessed by Child Health Questionnaire-Parent Form 50, parents reported that adolescents with chronic kidney disease due to urological disorders scored lower on the physical summary measure than a population based reference sample and they reported a negative effect on family activities and parental emotional well-being. These findings suggest that the Child Health Questionnaire-Parent Form 50 could provide a family based assessment of generic health related quality of life in adolescents with urological disorders. 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Google Scholar © 2008 by American Urological AssociationFiguresReferencesRelatedDetailsCited byDodson J, Furth S, Yenokyan G, Alcorn K, Diener-West M, Wu A and Gearhart J (2010) Parent Perspectives of Health Related Quality of Life for Adolescents With Bladder Exstrophy-Epispadias as Measured by the Child Health Questionnaire-Parent Form 50™Journal of Urology, VOL. 184, NO. 4S, (1656-1661), Online publication date: 1-Oct-2010. Volume 180Issue 4SOctober 2008Page: 1700-1704 Advertisement Copyright & Permissions© 2008 by American Urological AssociationKeywordsadolescentquality of lifequestionnaireskidneyparentAcknowledgmentsMarie Diener-West provided statistical advice and Korina FlorCruz assisted with the manuscript.MetricsAuthor Information Jennifer L. Dodson Department of Urology, The Johns Hopkins Medical Institutions, Baltimore, Maryland More articles by this author Arlene C. Gerson Department of Pediatrics, The Johns Hopkins Medical Institutions, Baltimore, Maryland More articles by this author Chun-Ju Hsiao Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland More articles by this author Frederick J. Kaskel Pediatric Nephrology, Albert Einstein College of Medicine, Valhalla, New York More articles by this author Robert A. Weiss Bronx and Maria Fareri Children's Hospital, Valhalla, New York More articles by this author Susan L. Furth Department of Pediatrics, The Johns Hopkins Medical Institutions, Baltimore, Maryland Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins University, Baltimore, Maryland More articles by this author Expand All Advertisement PDF downloadLoading ..." @default.
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