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- W2023647321 abstract "T HE DEVELOPMENT of comprehensive systems for the identification and follow-up of patients with IgA nephropathy (IgAN) will better establish the importance of IgAN as a cause of end-stage renal disease (ESRD); provide a readily available resource for testing hypotheses about the pathogenesis, natural history, and possible treatment interventions for IgAN; and gain epidemiologic data about IgAN in the United States. On April 12 and 13, 1996, a group of renal pathologists and nephrologists met at the Medical Education and Research Institute in Memphis, TN, to discuss the development of a regional databank for IgAN and to reach a consensus on how renal biopsy data will be managed in that databank. The term “databank” is used instead of “registry” to emphasize the concept that the information stored in the database is meant to be accessible to all serious investigators interested in IgAN. For over 15 years, Drs Robert J. Wyatt and Bruce A. Julian, with the collaboration of many renal pathologists and nephrologists in the fourstate region of Kentucky, Tennessee, Alabama, and Mississippi, have identified many of the known cases of IgAN in the region. The IgAN databank has been established in Memphis for entry of the clinical data for these patients. At the time of this conference, 987 patients from this region had been identified, and clinical data for almost 300 (mostly from the Lexington, KY, and Memphis, TN, areas) have been entered into the IgAN databank. The database was designed using the Macintosh-based relational database, 4th Dimension (ACIUS, Cupertino, CA) and may be accessed via modem. The latest version of 4th Dimension is platform independent, allowing use by both Windows and Macintosh operating systems. The purpose of the presentations on April 12, 1996, was to develop the framework for a discussion on the development of a system for the management of renal biopsy data in the IgAN data-" @default.
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- W2023647321 date "1997-06-01" @default.
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- W2023647321 title "IgA nephropathy databank: Development of a system for management of renal biopsy acquired data" @default.
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- W2023647321 doi "https://doi.org/10.1016/s0272-6386(97)90455-8" @default.
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