FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2026673893> ?p ?o ?g. }

• W2026673893 endingPage "504" @default.
• W2026673893 startingPage "499" @default.
• W2026673893 abstract "AbstractIn Italy 10–30% of patients who die with amyotrophic lateral sclerosis are invasively ventilated. It is difficult to predict when patients will die and when a specialist palliative care service may effectively be involved. Nineteen semi-structured interviews with informal family carers who looked after these patients who had died in last 10 years were undertaken to ascertain their experiences in the final stages of the disease. The mean survival after tracheostomy was 30 months (median 24 months). Fifty-eight percent of the patients had not wanted to be tracheostomized before the procedure, but often felt pressured into the decision to have a tracheostomy. Following the procedure the individual quality of life decreased for many patients and carers. In last 4–6 months both carers and patients were aware of a clear deterioration and reported cognitive-communication impairment, local infections and sepsis, pressure sores, the need for indwelling catheters and the use of sedative-analgesic drugs. The study shows that tracheostomy is often undertaken with little discussion. The end-of-life phase can be defined, with several indicators of deterioration, which could be triggers for the involvement of palliative care. AcknowledgementsThe authors thank all the participants who offered their painful memories in memory of their loved ones and to benefit other patients who will possibly be helped by the establishment of new services.Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper." @default.
• W2026673893 created "2016-06-24" @default.
• W2026673893 creator A5022047689 @default.
• W2026673893 creator A5049549975 @default.
• W2026673893 creator A5050486238 @default.
• W2026673893 creator A5063791836 @default.
• W2026673893 creator A5090628289 @default.
• W2026673893 date "2014-05-27" @default.
• W2026673893 modified "2023-10-02" @default.
• W2026673893 title "The last months of life of people with amyotrophic lateral sclerosis in mechanical invasive ventilation: A qualitative study" @default.
• W2026673893 cites W1554056672 @default.
• W2026673893 cites W1595244315 @default.
• W2026673893 cites W1967432288 @default.
• W2026673893 cites W1970082073 @default.
• W2026673893 cites W1976538004 @default.
• W2026673893 cites W1982263014 @default.
• W2026673893 cites W1985225040 @default.
• W2026673893 cites W2016932440 @default.
• W2026673893 cites W2023877970 @default.
• W2026673893 cites W2029538001 @default.
• W2026673893 cites W2033372808 @default.
• W2026673893 cites W2047122480 @default.
• W2026673893 cites W2065870992 @default.
• W2026673893 cites W2067189291 @default.
• W2026673893 cites W2094377712 @default.
• W2026673893 cites W2097020102 @default.
• W2026673893 cites W2101665670 @default.
• W2026673893 cites W2103458412 @default.
• W2026673893 cites W2109426297 @default.
• W2026673893 cites W2110300403 @default.
• W2026673893 cites W2128248053 @default.
• W2026673893 cites W2148872860 @default.
• W2026673893 cites W2157494194 @default.
• W2026673893 cites W2159538737 @default.
• W2026673893 cites W2167105734 @default.
• W2026673893 cites W4247976530 @default.
• W2026673893 cites W90960780 @default.
• W2026673893 doi "https://doi.org/10.3109/21678421.2014.913637" @default.
• W2026673893 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/24863495" @default.
• W2026673893 hasPublicationYear "2014" @default.
• W2026673893 type Work @default.
• W2026673893 sameAs 2026673893 @default.
• W2026673893 citedByCount "28" @default.
• W2026673893 countsByYear W20266738932015 @default.
• W2026673893 countsByYear W20266738932016 @default.
• W2026673893 countsByYear W20266738932017 @default.
• W2026673893 countsByYear W20266738932018 @default.
• W2026673893 countsByYear W20266738932019 @default.
• W2026673893 countsByYear W20266738932020 @default.
• W2026673893 countsByYear W20266738932021 @default.
• W2026673893 countsByYear W20266738932022 @default.
• W2026673893 countsByYear W20266738932023 @default.
• W2026673893 crossrefType "journal-article" @default.
• W2026673893 hasAuthorship W2026673893A5022047689 @default.
• W2026673893 hasAuthorship W2026673893A5049549975 @default.
• W2026673893 hasAuthorship W2026673893A5050486238 @default.
• W2026673893 hasAuthorship W2026673893A5063791836 @default.
• W2026673893 hasAuthorship W2026673893A5090628289 @default.
• W2026673893 hasBestOaLocation W20266738932 @default.
• W2026673893 hasConcept C118552586 @default.
• W2026673893 hasConcept C126322002 @default.
• W2026673893 hasConcept C159110408 @default.
• W2026673893 hasConcept C177713679 @default.
• W2026673893 hasConcept C2777080012 @default.
• W2026673893 hasConcept C2779134260 @default.
• W2026673893 hasConcept C2779951463 @default.
• W2026673893 hasConcept C2780596555 @default.
• W2026673893 hasConcept C2994186709 @default.
• W2026673893 hasConcept C71924100 @default.
• W2026673893 hasConceptScore W2026673893C118552586 @default.
• W2026673893 hasConceptScore W2026673893C126322002 @default.
• W2026673893 hasConceptScore W2026673893C159110408 @default.
• W2026673893 hasConceptScore W2026673893C177713679 @default.
• W2026673893 hasConceptScore W2026673893C2777080012 @default.
• W2026673893 hasConceptScore W2026673893C2779134260 @default.
• W2026673893 hasConceptScore W2026673893C2779951463 @default.
• W2026673893 hasConceptScore W2026673893C2780596555 @default.
• W2026673893 hasConceptScore W2026673893C2994186709 @default.
• W2026673893 hasConceptScore W2026673893C71924100 @default.
• W2026673893 hasIssue "7-8" @default.
• W2026673893 hasLocation W20266738931 @default.
• W2026673893 hasLocation W20266738932 @default.
• W2026673893 hasLocation W20266738933 @default.
• W2026673893 hasOpenAccess W2026673893 @default.
• W2026673893 hasPrimaryLocation W20266738931 @default.
• W2026673893 hasRelatedWork W2022247498 @default.
• W2026673893 hasRelatedWork W2130031396 @default.
• W2026673893 hasRelatedWork W2131245560 @default.
• W2026673893 hasRelatedWork W2149056309 @default.
• W2026673893 hasRelatedWork W2178517029 @default.
• W2026673893 hasRelatedWork W2241368663 @default.
• W2026673893 hasRelatedWork W2555671017 @default.
• W2026673893 hasRelatedWork W2904525494 @default.
• W2026673893 hasRelatedWork W3126445066 @default.
• W2026673893 hasRelatedWork W3204786972 @default.
• W2026673893 hasVolume "15" @default.
• W2026673893 isParatext "false" @default.
• W2026673893 isRetracted "false" @default.

• next