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- W2029128043 abstract "We have two children, Joanne and Carly. Joanne is a normal, healthy child who attends the local primary school and is making good progress. Carly is mentally handicapped and suffers from a genetically based illness called tuberous sclerosis. She attends a special school and receives additional care and training. I decided to write this narrative in a simple way, and as a down to earth account of family life with a mentally handicapped child. I would like professionals to read it, and maybe enhance their understanding of situations; parents, to show them that they are not on their own; and those not connected with mental handicap, as this section of health care needs all the positive publicity it can get …" @default.
- W2029128043 created "2016-06-24" @default.
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- W2029128043 date "2009-08-26" @default.
- W2029128043 modified "2023-09-25" @default.
- W2029128043 title "Our “Blue Rose”- a parent's experience of tuberous sclerosis" @default.
- W2029128043 doi "https://doi.org/10.1111/j.1468-3156.1984.tb00184.x" @default.
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