FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2030874486> ?p ?o ?g. }

• W2030874486 endingPage "172" @default.
• W2030874486 startingPage "167" @default.
• W2030874486 abstract "In the face of inadequate treatments, rare disease patients have begun acting like scientists and studying themselves. Through online networks, patient groups transform disease experiences into novel research data: exchanging therapeutic anecdotes, willingly self-testing treatments and compiling outcomes into preliminary research hypotheses which are subsequently relayed to professionals. Through such efforts, rare disease patient groups have helped evaluate and validate several new therapeutic modalities. This article specifically explores the process of patient-driven research while considering broader implications of the trend. While issues regarding methodological quality and patient safety must not be overlooked, through future partnerships with academia and the pharmaceutical industry, patient groups could function as a powerful resource in rare disease research." @default.
• W2030874486 created "2016-06-24" @default.
• W2030874486 creator A5066356566 @default.
• W2030874486 date "2012-02-01" @default.
• W2030874486 modified "2023-10-18" @default.
• W2030874486 title "Rare disease patient groups as clinical researchers" @default.
• W2030874486 cites W1534789916 @default.
• W2030874486 cites W1830803737 @default.
• W2030874486 cites W1966897685 @default.
• W2030874486 cites W1967494244 @default.
• W2030874486 cites W1972307981 @default.
• W2030874486 cites W1975773180 @default.
• W2030874486 cites W1979682439 @default.
• W2030874486 cites W1988228165 @default.
• W2030874486 cites W1996669776 @default.
• W2030874486 cites W2001157450 @default.
• W2030874486 cites W2017158938 @default.
• W2030874486 cites W2017725542 @default.
• W2030874486 cites W2018311576 @default.
• W2030874486 cites W2019692520 @default.
• W2030874486 cites W2027836888 @default.
• W2030874486 cites W2029079640 @default.
• W2030874486 cites W2029908886 @default.
• W2030874486 cites W2035505404 @default.
• W2030874486 cites W2036471225 @default.
• W2030874486 cites W2037148595 @default.
• W2030874486 cites W2047356238 @default.
• W2030874486 cites W2050104081 @default.
• W2030874486 cites W2060942743 @default.
• W2030874486 cites W2061350910 @default.
• W2030874486 cites W2064073012 @default.
• W2030874486 cites W2073743819 @default.
• W2030874486 cites W2084170210 @default.
• W2030874486 cites W2087870568 @default.
• W2030874486 cites W2091700202 @default.
• W2030874486 cites W2091855139 @default.
• W2030874486 cites W2096305393 @default.
• W2030874486 cites W2116801544 @default.
• W2030874486 cites W2118257626 @default.
• W2030874486 cites W2130839195 @default.
• W2030874486 cites W2132149523 @default.
• W2030874486 cites W2132265655 @default.
• W2030874486 cites W2133216878 @default.
• W2030874486 cites W2152158712 @default.
• W2030874486 cites W2158310952 @default.
• W2030874486 cites W2159806677 @default.
• W2030874486 cites W2164842896 @default.
• W2030874486 cites W220246017 @default.
• W2030874486 cites W2332271446 @default.
• W2030874486 doi "https://doi.org/10.1016/j.drudis.2011.09.020" @default.
• W2030874486 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/22016088" @default.
• W2030874486 hasPublicationYear "2012" @default.
• W2030874486 type Work @default.
• W2030874486 sameAs 2030874486 @default.
• W2030874486 citedByCount "20" @default.
• W2030874486 countsByYear W20308744862012 @default.
• W2030874486 countsByYear W20308744862013 @default.
• W2030874486 countsByYear W20308744862014 @default.
• W2030874486 countsByYear W20308744862015 @default.
• W2030874486 countsByYear W20308744862016 @default.
• W2030874486 countsByYear W20308744862018 @default.
• W2030874486 countsByYear W20308744862019 @default.
• W2030874486 countsByYear W20308744862020 @default.
• W2030874486 countsByYear W20308744862021 @default.
• W2030874486 countsByYear W20308744862022 @default.
• W2030874486 countsByYear W20308744862023 @default.
• W2030874486 crossrefType "journal-article" @default.
• W2030874486 hasAuthorship W2030874486A5066356566 @default.
• W2030874486 hasConcept C111919701 @default.
• W2030874486 hasConcept C14036430 @default.
• W2030874486 hasConcept C142724271 @default.
• W2030874486 hasConcept C144024400 @default.
• W2030874486 hasConcept C15744967 @default.
• W2030874486 hasConcept C1862650 @default.
• W2030874486 hasConcept C206345919 @default.
• W2030874486 hasConcept C2779134260 @default.
• W2030874486 hasConcept C2779652045 @default.
• W2030874486 hasConcept C2779701055 @default.
• W2030874486 hasConcept C2779903281 @default.
• W2030874486 hasConcept C3019692148 @default.
• W2030874486 hasConcept C31258907 @default.
• W2030874486 hasConcept C36289849 @default.
• W2030874486 hasConcept C41008148 @default.
• W2030874486 hasConcept C56739046 @default.
• W2030874486 hasConcept C71924100 @default.
• W2030874486 hasConcept C78458016 @default.
• W2030874486 hasConcept C86803240 @default.
• W2030874486 hasConcept C98045186 @default.
• W2030874486 hasConcept C98274493 @default.
• W2030874486 hasConceptScore W2030874486C111919701 @default.
• W2030874486 hasConceptScore W2030874486C14036430 @default.
• W2030874486 hasConceptScore W2030874486C142724271 @default.
• W2030874486 hasConceptScore W2030874486C144024400 @default.
• W2030874486 hasConceptScore W2030874486C15744967 @default.
• W2030874486 hasConceptScore W2030874486C1862650 @default.
• W2030874486 hasConceptScore W2030874486C206345919 @default.
• W2030874486 hasConceptScore W2030874486C2779134260 @default.
• W2030874486 hasConceptScore W2030874486C2779652045 @default.

• next