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- W2034782181 abstract "The sickle cell population is rapidly increasing, yet the interface between hospital and community care remains fragmented and uncoordinated. Historically the care for patients with sickle cell disease has been predominantly hospital-based, because of the perceived complexity of the illness and the need to be linked with specialist haematology departments. However, there is evidence to suggest that the needs of sickle cell patients are not being adequately addressed by this narrow focus. Moreover, there is a general feeling amongst clinicians in London that this group of patients has become dependent upon hospital-based services. If such dependency exists then it occurs primarily because there are limited services available to patients in the community. This paper discusses the current management issues and resultant problems which arise from inadequate and poorly functioning community care pathways. It is suggested that immeasurable benefits can accrue for individual sufferers and families if services are developed to be consistent with current services available for other acute/chronic life threatening illnesses. In addition there are likely to be substantial gains for purchasers and providers of health care as a result of these initiatives." @default.
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- W2034782181 date "1996-12-01" @default.
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- W2034782181 title "Managing sickle cell disease: the hospital-community interface" @default.
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- W2034782181 doi "https://doi.org/10.12968/bjch.1996.1.8.7532" @default.
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