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- W2037463811 abstract "Therapeutic advances and a shift in the role of advocacy foundations reinforce the important role for Duchenne/Becker muscular dystrophy (DBMD) registries. DuchenneConnect is a self-report patient registry, developed to educate and connect patients, providers and researchers and facilitate clinical trials. The Registry is developing a Clinic Services Resource survey (launch April 2011) to report on clinical care in the United States. DuchenneConnect features web-based surveys stored in a HIPAA-compliant database." @default.
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- W2037463811 date "2011-10-01" @default.
- W2037463811 modified "2023-09-24" @default.
- W2037463811 title "P4.60 New horizons in the DuchenneConnect registry" @default.
- W2037463811 doi "https://doi.org/10.1016/j.nmd.2011.06.1025" @default.
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