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- W2040209197 abstract "This paper reports findings about parents' experiences of caring for young people with A utistic S pectrum C onditions ( ASC s) moving into adulthood. In‐depth interviews were conducted with 38 parents of young people (15–21 years) with ASC s. Data were analysed thematically. In the perceived absence of service support, parents' acted as ‘care‐coordinators’ and ‘life‐supporters’ for their child as they moved into adulthood. These roles came with little choice, emotional demands and personal restrictions. Being supported was important for parents, but preferences differed regarding what this should look like. Implications for policy are discussed." @default.
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- W2040209197 date "2014-11-07" @default.
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- W2040209197 title "Choice and caring: The experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood" @default.
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- W2040209197 doi "https://doi.org/10.1111/chso.12104" @default.
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