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- W2040610067 abstract "Back to table of contents Previous article Next article EditorialFull AccessIssues for DSM-V: Incorporating Patients’ Subjective ExperiencesElizabeth H. Flanagan Ph.D.Larry Davidson Ph.D.John S. Strauss M.D.Elizabeth H. Flanagan Ph.D.Search for more papers by this authorLarry Davidson Ph.D.Search for more papers by this authorJohn S. Strauss M.D.Search for more papers by this authorPublished Online:1 Mar 2007AboutSectionsView articleView PDFView EPUB Start CME ToolsAdd to favoritesDownload CitationsTrack Citations ShareShare onFacebookTwitterLinked InEmail View articleIn the third edition of DSM, significant improvements were made over previous editions by replacing clinicians’ subjective interpretations of mental disorders with objective descriptions of signs and symptoms that could be rated reliably across investigators. Along with clinicians’ subjective impressions, however, the subjective experiences of people with the mental disorders were removed as well. The subjective experiences of patients could be a valuable component of future editions of DSM, since people’s experiences of a disorder may indicate major underlying processes and may differ from the characteristics of the disorder objectively perceived by outside observers. For instance, one criterion for a diagnosis of schizophrenia is negative symptoms—“affective flattening, alogia, or avolition” (DSM-IV-TR, p. 312). These symptoms have led to descriptions of the patient with schizophrenia as an “empty shell—[who] cannot think, feel, or act . . . [who] has lost the capacity both to suffer and to hope” ( 1 , p. 63). Yet when patients with negative symptoms are asked to describe their subjective experiences, prominent themes are loss, loneliness, and the desire for love (2) . One man with significant negative symptoms (as assessed independently by five clinicians) wrote: “I am a lonely nothing. . . . My afflictions fill the place that was meant for sharing love. I am crying in despair. . . . I have a dreadful fear of not loving” (quoted in reference 3 , pp. 202, 205). Similar evidence comes from Miller’s study of patients’ subjective experience of borderline personality disorder (4) . Rather than having an “identity disturbance: markedly and persistently unstable self-image or sense of self” (DSM-IV-TR, p. 710), patients in Miller’s study were able to clearly and consistently define their preferences, who they were, and instances when they could and could not be themselves. A core part of this identity, however, was feeling estranged from others and inadequate when judged by perceived social standards. One patient was quoted as saying, “I never met anyone that I was equal to or better than, no matter what . . . Even if it is a bum on the street, there is something that makes him better than me. It is not that I have done anything bad; it is like what I was born into.” ( 4 , p. 1217). Thus, Miller eloquently summarized, “rather than having an impaired sense of self, they seemed to have a sense of themselves as impaired” (p. 1216). Patient-subjective data could easily be incorporated into DSM-V. Developing diagnostic criteria based on people’s subjective perceptions of mental disorders would require fewer changes than many of the current suggestions for DSM-V (see references 5 – 7 , for example), could be as reliably and validly diagnosed as current criteria (e.g., a “sense of self as impaired” could be as reliably and accurately diagnosed as “impaired sense of self”), and would not require that clinicians learn a new structure or conceptualization of mental illness. In addition, including studies that examine patients’ subjective experiences in the pool of data consulted when deciding how disorders should be defined could be particularly helpful in addressing inconsistencies across studies or gaps in data sets, since qualitative research allows for more in-depth inquiry into focused issues. Moreover, including people with mental disorders in DSM-V workgroups could provide invaluable insights from those who have daily first-hand experience of a disorder. Despite assumptions about patients’ lack of insight into their illness, when asked, they often are able to describe both their experiences of illness and what might be helpful for them (8) . Finally, incorporating patients’ subjective experiences into DSM could help clinicians understand more accurately their patients’ experiences and could substantially increase empathic bridges, an important predictor of positive treatment relationships and outcomes (9) . Increasing the validity and clinical utility of DSM is of the utmost importance (10) . Patients’ descriptions of their experiences of mental disorders are a fertile but virtually untapped resource that may be a valuable means for achieving these goals. Address correspondence and reprint requests to Dr. Flanagan, Yale Program for Recovery and Community Health, Department of Psychiatry, Yale School of Medicine, 319 Peck St., Erector Square 6W, Suite 1C, New Haven, CT 06513; [email protected] (e-mail).The authors report no competing interests.Supported in part by National Institute of Health grant F32-MH069013 to Dr. Flanagan.Editorials discussing other DSM-V issues can be submitted to the Journal at http://appi.manuscriptcentral.com. Submissions should not exceed 500 words.References1. Andreasen NC: The Broken Brain: The Biological Revolution in Psychiatry. New York, Harper & Row, 1984Google Scholar2. Davidson L, Stayner D: Loss, loneliness, and the desire for love: perspectives on the social lives of people with schizophrenia. Psychiatr Rehabil J 1997; 20:3–12Google Scholar3. Bouricius JK: Negative symptoms and emotions in schizophrenia. Schizophr Bull 1989; 15:201–208Google Scholar4. Miller SG: Borderline personality disorder from the patient’s perspective. Hosp Community Psychiatry 1994; 45:1215–1219Google Scholar5. Kreuger RF, Markon KE, Patrick CJ, Iacono WG: Externalizing psychopathology in adulthood: a dimensional-spectrum conceptualization and its implications for DSM-V. J Abnorm Psychol 2005; 114:537–550Google Scholar6. Watson D: Rethinking the mood and anxiety disorders: a quantitative hierarchical model for DSM-V. J Abnorm Psychol 2005; 114:522–536Google Scholar7. Widiger TA, Samuel DB: Diagnostic categories or dimensions? a question for the Diagnostic and Statistical Manual of Mental Disorders, 5th ed. J Abnorm Psychol 2005; 114:494–504Google Scholar8. Davidson L: Living Outside Mental Illness: Qualitative Studies of Recovery in Schizophrenia. New York, New York University Press, 2003Google Scholar9. Horvath AO, Symonds D: Relation between working alliance and outcome in psychotherapy. J Counseling Psychol 1991; 38:139–149Google Scholar10. Kupfer DJ, First MB, Regier DA (eds): A Research Agenda for DSM-V. Washington, DC, American Psychiatric Association, 2002Google Scholar FiguresReferencesCited byDetailsCited By“It means so much for me to have a choice”: a qualitative study providing first-person perspectives on medication-free treatment in mental health care8 August 2020 | BMC Psychiatry, Vol. 20, No. 1Frontiers in Psychology, Vol. 10Scandinavian Psychologist, Vol. 3Journal of Aging Studies, Vol. 29Community Mental Health Journal, Vol. 45, No. 5Using Qualitative Research to Inform Mental Health Policy1 March 2008 | The Canadian Journal of Psychiatry, Vol. 53, No. 3Psychiatric Quarterly, Vol. 79, No. 4Scandinavian Journal of Psychology, Vol. 49, No. 5 Volume 164Issue 3 March, 2007Pages 391-392THE AMERICAN JOURNAL OF PSYCHIATRY March 2007 Volume 164 Number 3 Metrics History Published online 1 March 2007 Published in print 1 March 2007" @default.
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