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- W2043651197 abstract "Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers<mml:math xmlns:mml=http://www.w3.org/1998/Math/MathML id=M1><mml:mrow><mml:mrow><mml:mo stretchy=false>(</mml:mo><mml:mrow><mml:mi>n</mml:mi><mml:mo>=</mml:mo><mml:mn>1500</mml:mn></mml:mrow><mml:mo stretchy=false>)</mml:mo></mml:mrow></mml:mrow></mml:math>collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents<mml:math xmlns:mml=http://www.w3.org/1998/Math/MathML id=M2><mml:mrow><mml:mrow><mml:mo stretchy=false>(</mml:mo><mml:mrow><mml:mi>n</mml:mi><mml:mo>=</mml:mo><mml:mn>839</mml:mn></mml:mrow><mml:mo stretchy=false>)</mml:mo></mml:mrow></mml:mrow></mml:math>at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden." @default.
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- W2043651197 date "2014-01-01" @default.
- W2043651197 modified "2023-10-16" @default.
- W2043651197 title "Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden" @default.
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- W2043651197 doi "https://doi.org/10.1155/2014/529878" @default.
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