FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2043802352> ?p ?o ?g. }

• W2043802352 endingPage "1498" @default.
• W2043802352 startingPage "1492" @default.
• W2043802352 abstract "Newborn screening saves lives, but psychosocial complications after genetic screening have led to doubts about expanding programs. Because complications have been blamed on ineffective communication of results, a population-scale system to ensure communication quality may improve outcomes. The objective of this study was to develop and evaluate a method to assess the content of communication after newborn genetic screening.We abstracted content data and calculated quantitative scores for 3 communication quality indicators (key content, early placement of good news, and excessive background content) for 59 transcribed conversations between pediatric residents and simulated parents of an infant who was found via newborn screening to carry either cystic fibrosis or sickle cell hemoglobinopathy.Only 8.5% of transcripts contained the key content items that were thought to be necessary for parental understanding; 27.1% included reassuring news about carrier status within the first 10% of content. Scores for 3 quality indicators fell in the low performance range in 35.6%, 30.5%, and 27.1% of transcripts, respectively. The most common topic was background about the disease (22% of content statements) even though the infant did not have the disease. Surprisingly, 50% of sickle trait transcripts included counseling about a possible risk for sudden death.Assessment of the content domain of communication quality identified some high-quality communication interspersed with many missed opportunities. If integrated into newborn screening, our method may help to alleviate some of society's ethical concerns about benefit and risk after newborn and other genetic screening." @default.
• W2043802352 created "2016-06-24" @default.
• W2043802352 creator A5012051210 @default.
• W2043802352 creator A5033440288 @default.
• W2043802352 creator A5073269563 @default.
• W2043802352 date "2005-12-01" @default.
• W2043802352 modified "2023-10-14" @default.
• W2043802352 title "Content of Communication by Pediatric Residents After Newborn Genetic Screening" @default.
• W2043802352 cites W105936202 @default.
• W2043802352 cites W116417846 @default.
• W2043802352 cites W1591998101 @default.
• W2043802352 cites W1963996662 @default.
• W2043802352 cites W1991506216 @default.
• W2043802352 cites W1991535882 @default.
• W2043802352 cites W1997092421 @default.
• W2043802352 cites W2054617365 @default.
• W2043802352 cites W2074664905 @default.
• W2043802352 cites W2080786535 @default.
• W2043802352 cites W2109116356 @default.
• W2043802352 cites W2122678717 @default.
• W2043802352 cites W2138881269 @default.
• W2043802352 cites W2151232014 @default.
• W2043802352 cites W2165070289 @default.
• W2043802352 cites W2170076817 @default.
• W2043802352 cites W2170843389 @default.
• W2043802352 cites W2172168792 @default.
• W2043802352 cites W2557253219 @default.
• W2043802352 cites W4241014494 @default.
• W2043802352 doi "https://doi.org/10.1542/peds.2004-2611" @default.
• W2043802352 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/16322176" @default.
• W2043802352 hasPublicationYear "2005" @default.
• W2043802352 type Work @default.
• W2043802352 sameAs 2043802352 @default.
• W2043802352 citedByCount "34" @default.
• W2043802352 countsByYear W20438023522012 @default.
• W2043802352 countsByYear W20438023522013 @default.
• W2043802352 countsByYear W20438023522014 @default.
• W2043802352 countsByYear W20438023522015 @default.
• W2043802352 countsByYear W20438023522017 @default.
• W2043802352 countsByYear W20438023522022 @default.
• W2043802352 crossrefType "journal-article" @default.
• W2043802352 hasAuthorship W2043802352A5012051210 @default.
• W2043802352 hasAuthorship W2043802352A5033440288 @default.
• W2043802352 hasAuthorship W2043802352A5073269563 @default.
• W2043802352 hasConcept C106934330 @default.
• W2043802352 hasConcept C118552586 @default.
• W2043802352 hasConcept C126322002 @default.
• W2043802352 hasConcept C142724271 @default.
• W2043802352 hasConcept C150966472 @default.
• W2043802352 hasConcept C187212893 @default.
• W2043802352 hasConcept C199360897 @default.
• W2043802352 hasConcept C2776169613 @default.
• W2043802352 hasConcept C2776938444 @default.
• W2043802352 hasConcept C2777566322 @default.
• W2043802352 hasConcept C2779134260 @default.
• W2043802352 hasConcept C2908647359 @default.
• W2043802352 hasConcept C41008148 @default.
• W2043802352 hasConcept C512399662 @default.
• W2043802352 hasConcept C54355233 @default.
• W2043802352 hasConcept C71924100 @default.
• W2043802352 hasConcept C80227256 @default.
• W2043802352 hasConcept C86803240 @default.
• W2043802352 hasConcept C99454951 @default.
• W2043802352 hasConceptScore W2043802352C106934330 @default.
• W2043802352 hasConceptScore W2043802352C118552586 @default.
• W2043802352 hasConceptScore W2043802352C126322002 @default.
• W2043802352 hasConceptScore W2043802352C142724271 @default.
• W2043802352 hasConceptScore W2043802352C150966472 @default.
• W2043802352 hasConceptScore W2043802352C187212893 @default.
• W2043802352 hasConceptScore W2043802352C199360897 @default.
• W2043802352 hasConceptScore W2043802352C2776169613 @default.
• W2043802352 hasConceptScore W2043802352C2776938444 @default.
• W2043802352 hasConceptScore W2043802352C2777566322 @default.
• W2043802352 hasConceptScore W2043802352C2779134260 @default.
• W2043802352 hasConceptScore W2043802352C2908647359 @default.
• W2043802352 hasConceptScore W2043802352C41008148 @default.
• W2043802352 hasConceptScore W2043802352C512399662 @default.
• W2043802352 hasConceptScore W2043802352C54355233 @default.
• W2043802352 hasConceptScore W2043802352C71924100 @default.
• W2043802352 hasConceptScore W2043802352C80227256 @default.
• W2043802352 hasConceptScore W2043802352C86803240 @default.
• W2043802352 hasConceptScore W2043802352C99454951 @default.
• W2043802352 hasIssue "6" @default.
• W2043802352 hasLocation W20438023521 @default.
• W2043802352 hasLocation W20438023522 @default.
• W2043802352 hasOpenAccess W2043802352 @default.
• W2043802352 hasPrimaryLocation W20438023521 @default.
• W2043802352 hasRelatedWork W1891563673 @default.
• W2043802352 hasRelatedWork W1981671110 @default.
• W2043802352 hasRelatedWork W1999157046 @default.
• W2043802352 hasRelatedWork W2081036694 @default.
• W2043802352 hasRelatedWork W2087791539 @default.
• W2043802352 hasRelatedWork W2734174289 @default.
• W2043802352 hasRelatedWork W2770763248 @default.
• W2043802352 hasRelatedWork W3024456095 @default.
• W2043802352 hasRelatedWork W3043669537 @default.
• W2043802352 hasRelatedWork W4255428519 @default.
• W2043802352 hasVolume "116" @default.

• next