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- W2045493155 abstract "Informal caregivers provide care to dementia patients, and this service prolongs their stay at home. To describe characteristics of dementia patients in the province of Alicante, as well as the profiles and roles of caregivers who assist them. Multi-centre prospective study carried out in 4 neurology departments in Alicante (June 2009–January 2010). Dementia patients’ relatives/caregivers were included in sequential order. The following variables were analysed: (a) Demographic information pertaining to the patient and caregivers (age, sex, marital and employment status, educational level, relationship to patient); (b) patient's family unit; (c) motivating factor for primary caregiver (PC); (d) secondary caregiver (SC) roles; (e) country of citizenship of formal caregiver (FC) and source of remuneration (private/public); (f) caregivers’ knowledge of dementia. Most of our patients live at home (74.8%), and are female (69%) with Alzheimer's disease (78.4%) in a moderately severe stage (GDS level 4–5, 71.6%). PCs and SCs are mainly women (72.1% and 60.5%, respectively), middle-aged and directly related to the patient (sons/daughters account for 64.3% of the PCs and 54.4% of the SCs); most are homemakers with a low educational level. Caregivers in the first category (PC) provide care due to moral obligation (75%), while those in the second (SC) involve patients in leisure or other stimulating activities (82.3%). Absent caregivers tend to be males (73.3%) residing long distances from the relative (52.4%). The FC tends to be female (91.7%), Spanish (81.8%) and privately remunerated. Women dominate the network of caregivers for dementia patients, whether as principal caregivers, supporting caregivers or formal caregivers (in all cases, they have only limited training in dementia management). Males are largely absent. Better knowledge of the care structure supporting dementia patients may be helpful in the overall management of these patients. Los cuidadores informales garantizan el cuidado de los pacientes con demencia, prolongando la estancia en su domicilio. Describir las características de los pacientes con demencia de la provincia de Alicante, así como los perfiles y roles de los cuidadores implicados en su manejo. Estudio prospectivo multicéntrico realizado en 4 consultas de neurología de la provincia de Alicante (junio del 2009–enero del 2010). Inclusión consecutiva de familiares/cuidadores de pacientes con demencia. Analizamos: (a) datos demográficos del paciente y cuidadores (edad/sexo, estado civil/laboral, estudios, parentesco); (b) unidad de convivencia del paciente; (c) motivación para el cuidado del cuidador principal (CP); (d) roles del cuidador secundario (CS); (e) nacionalidad del cuidador formal (CF) y origen remuneración (privada/institucional), y (f) formación en demencias de los cuidadores. Nuestros pacientes residen en su domicilio (74,8%). Principalmente, son mujeres (69%) con enfermedad de Alzheimer (78,4%) moderadamente grave (GDS 4–5, 71,6%). CP y CS son mujeres (72,1% vs 60,5%), de edad media, parentesco directo (hijo/a 64,3% vs 54,4%), nivel cultural bajo y amas de casa. Las primeras garantizan el cuidado por obligación moral (75%), las segundas se ocupan del ocio/estimulación del paciente (82,3%). Los grandes ausentes son los varones (73,3%), quienes residen lejos del familiar (52,4%). El CF es una mujer (91,7%), española (81,8%) con remuneración privada. La mujer es el elemento principal en la red de cuidadores de pacientes con demencia: como CP, de apoyo o CF (todos con escasa formación en demencias), siendo el varón el gran ausente. Conocer la estructura de cuidados de estos pacientes facilitará su manejo." @default.
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- W2045493155 date "2013-03-01" @default.
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- W2045493155 title "Characteristics of informal caregivers of patients with dementia in Alicante province" @default.
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- W2045493155 doi "https://doi.org/10.1016/j.nrleng.2012.03.012" @default.
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