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- W2047362016 abstract "The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It is claimed that children’s bodies are not mere physical objects, but body-subjects due to which children, as persons, can contribute to research that may hold no direct clinical benefit to them even before they can give informed consent." @default.
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- W2047362016 date "2014-11-30" @default.
- W2047362016 modified "2023-09-23" @default.
- W2047362016 title "Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children" @default.
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- W2047362016 doi "https://doi.org/10.1007/s11019-014-9616-3" @default.
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