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• W2054697712 abstract "Parents of disabled children have substantial health and social care needs and therefore, a great need for information. Access to health information for parents and health professionals has been revolutionized by the Internet [1]; however, as Blackburn and Read note, “The provision of crucial information to parents of disabled children, at the time when they need it and in a form that they can use, is an intractable problem” [2]. Relevant health information can be difficult to find and is variable in quality [3]. How can medical librarians work with community groups, public health workers, and health providers to assist parents of chronically ill children find and obtain information?The Central Mass Access to Child Health Information (CATCH) project attempted to address this problem. CATCH targeted eleven public health agencies in central Massachusetts that serve chronically ill and/or developmentally disabled children and their families. Participants varied from early intervention centers to disease-specific agencies (Table 1). CATCH provided these community-based, public health agency staff members with training to locate and effectively use quality Internet health information. CATCH developed a model for outreach and collaboration as well as established new community partnerships for the Lamar Soutter Library (LSL) of the University of Massachusetts Medical School.Table 1 Targeted agenciesTARGET POPULATION AND SIGNIFICANT ISSUESMassachusetts is home to approximately 221,840 parent-reported children with special health care needs, nearly 15% of children in the state (national average 12.8%) [4]. Previous projects have explored this population's need for health information [5, 6]. The Finding Information Resources and Services through Technology (FIRST) project, funded by the Massachusetts Department of Public Health and located in the UMass Memorial Children's Medical Center (CMC), served the information needs of families with chronically ill children from 1995 to 1999. Parents participating in the FIRST project stated that they need information about their children's health conditions beyond what physicians provide. When the FIRST project ended due to state budget cuts, CATCH filled the gap.CATCH targeted public health agencies in central Massachusetts (Figure 1) that serve children with chronic physical, developmental, behavioral, or emotional disorders and their families. To establish relationships with relevant organizations, project investigators identified community-based agencies in the New England Information on Disabilities Exchange (INDEX) database that serve children in central Massachusetts and invited these agencies to participate in the project [7]. Eleven agencies responded positively. Table 1 lists these agencies and their corresponding target populations (650 staff serving 25,000 children)." @default.
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• W2054697712 date "2007-07-01" @default.
• W2054697712 modified "2023-09-25" @default.
• W2054697712 title "The CATCH Project: Central Mass Access to Child Health Information*" @default.
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• W2054697712 doi "https://doi.org/10.3163/1536-5050.95.3.337" @default.
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