FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2063502731> ?p ?o ?g. }

• W2063502731 endingPage "222" @default.
• W2063502731 startingPage "215" @default.
• W2063502731 abstract "Return of individual research results from genomic studies is a hotly debated ethical issue in genomic research. However, the perspective of key stakeholders-institutional review board (IRB) professionals-has been missing from this dialogue. This study explores the positions and experiences of IRB members and staff regarding this issue.In-depth interviews with 31 IRB professionals at six sites across the United States.IRB professionals agreed that research results should be returned to research participants when results are medically actionable but only if the participants want to know the results. Many respondents expected researchers to address the issue of return of results (ROR) in the IRB application and informed-consent document. Many respondents were not comfortable with their expertise in genomics research and only a few described actual experiences in addressing ROR. Although participants agreed that guidelines would be helpful, most were reticent to develop them in isolation. Even where IRB guidance exists (e.g., Clinical Laboratory Improvement Act (CLIA) lab certification required for return), in practice, the guidance has been overruled to allow ROR (e.g., no CLIA lab performs the assay).An IRB-researcher partnership is needed to help inform responsible and feasible institutional approaches to returning research results." @default.
• W2063502731 created "2016-06-24" @default.
• W2063502731 creator A5004413072 @default.
• W2063502731 creator A5012270604 @default.
• W2063502731 creator A5012753220 @default.
• W2063502731 creator A5023589345 @default.
• W2063502731 creator A5034228539 @default.
• W2063502731 creator A5041163475 @default.
• W2063502731 creator A5072765998 @default.
• W2063502731 creator A5074861557 @default.
• W2063502731 creator A5085745295 @default.
• W2063502731 creator A5091460597 @default.
• W2063502731 date "2012-02-01" @default.
• W2063502731 modified "2023-09-27" @default.
• W2063502731 title "IRB perspectives on the return of individual results from genomic research" @default.
• W2063502731 cites W120487349 @default.
• W2063502731 cites W1494813434 @default.
• W2063502731 cites W1554664098 @default.
• W2063502731 cites W1575714269 @default.
• W2063502731 cites W1973737412 @default.
• W2063502731 cites W1979022382 @default.
• W2063502731 cites W1980070532 @default.
• W2063502731 cites W1981216743 @default.
• W2063502731 cites W1982682643 @default.
• W2063502731 cites W1983973208 @default.
• W2063502731 cites W1984986788 @default.
• W2063502731 cites W1994805877 @default.
• W2063502731 cites W2003159632 @default.
• W2063502731 cites W2008647280 @default.
• W2063502731 cites W2012254260 @default.
• W2063502731 cites W2015481161 @default.
• W2063502731 cites W2016172156 @default.
• W2063502731 cites W2028807476 @default.
• W2063502731 cites W2034498747 @default.
• W2063502731 cites W2047485226 @default.
• W2063502731 cites W2067439408 @default.
• W2063502731 cites W2071677204 @default.
• W2063502731 cites W2078333234 @default.
• W2063502731 cites W2109100666 @default.
• W2063502731 cites W2113673837 @default.
• W2063502731 cites W2122683375 @default.
• W2063502731 cites W2129907698 @default.
• W2063502731 cites W2230764959 @default.
• W2063502731 cites W2466767090 @default.
• W2063502731 cites W4243456351 @default.
• W2063502731 cites W79229537 @default.
• W2063502731 doi "https://doi.org/10.1038/gim.2011.10" @default.
• W2063502731 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/3493147" @default.
• W2063502731 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/22241094" @default.
• W2063502731 hasPublicationYear "2012" @default.
• W2063502731 type Work @default.
• W2063502731 sameAs 2063502731 @default.
• W2063502731 citedByCount "55" @default.
• W2063502731 countsByYear W20635027312012 @default.
• W2063502731 countsByYear W20635027312013 @default.
• W2063502731 countsByYear W20635027312014 @default.
• W2063502731 countsByYear W20635027312015 @default.
• W2063502731 countsByYear W20635027312016 @default.
• W2063502731 countsByYear W20635027312017 @default.
• W2063502731 countsByYear W20635027312018 @default.
• W2063502731 countsByYear W20635027312019 @default.
• W2063502731 countsByYear W20635027312020 @default.
• W2063502731 countsByYear W20635027312021 @default.
• W2063502731 crossrefType "journal-article" @default.
• W2063502731 hasAuthorship W2063502731A5004413072 @default.
• W2063502731 hasAuthorship W2063502731A5012270604 @default.
• W2063502731 hasAuthorship W2063502731A5012753220 @default.
• W2063502731 hasAuthorship W2063502731A5023589345 @default.
• W2063502731 hasAuthorship W2063502731A5034228539 @default.
• W2063502731 hasAuthorship W2063502731A5041163475 @default.
• W2063502731 hasAuthorship W2063502731A5072765998 @default.
• W2063502731 hasAuthorship W2063502731A5074861557 @default.
• W2063502731 hasAuthorship W2063502731A5085745295 @default.
• W2063502731 hasAuthorship W2063502731A5091460597 @default.
• W2063502731 hasBestOaLocation W20635027311 @default.
• W2063502731 hasConcept C118552586 @default.
• W2063502731 hasConcept C12713177 @default.
• W2063502731 hasConcept C141071460 @default.
• W2063502731 hasConcept C142724271 @default.
• W2063502731 hasConcept C153997805 @default.
• W2063502731 hasConcept C154945302 @default.
• W2063502731 hasConcept C15744967 @default.
• W2063502731 hasConcept C17744445 @default.
• W2063502731 hasConcept C199539241 @default.
• W2063502731 hasConcept C204787440 @default.
• W2063502731 hasConcept C2777106319 @default.
• W2063502731 hasConcept C39549134 @default.
• W2063502731 hasConcept C41008148 @default.
• W2063502731 hasConcept C46304622 @default.
• W2063502731 hasConcept C509550671 @default.
• W2063502731 hasConcept C512399662 @default.
• W2063502731 hasConcept C68122502 @default.
• W2063502731 hasConcept C71750763 @default.
• W2063502731 hasConcept C71924100 @default.
• W2063502731 hasConceptScore W2063502731C118552586 @default.
• W2063502731 hasConceptScore W2063502731C12713177 @default.
• W2063502731 hasConceptScore W2063502731C141071460 @default.
• W2063502731 hasConceptScore W2063502731C142724271 @default.

• next